firstname.lastname@example.org www.sjogrens.org Other Contact Information
6707 Democracy Blvd., Suite 325
Bethesda, MD 20817
1-800-475-6473 (Voice - Toll-free) 301-530-4420 (Voice) 301-530-4415 (FAX) Description
The Sjogren's Syndrome Foundation (SSF) is a nonprofit organization established to educate patients and their families about Sjogren's Syndrome, increase public and professional awareness, and encourage research into new treatments and a cure. The SSF sponsors nearly 100 support groups throughout the U.S. and Canada. These groups, run by volunteers, provide members with the opportunity to share advice and tips for living more comfortably with Sjogren's. SSF Patients seminars, offering educational opportunities with expert speakers, are offered throughout the year and are open to the public.
SSF makes available a basic information packet on Sjogren's Syndrome. The SSF offers brochures on Sjogren's Syndrome, Dry Eye, Dry Mouth, Tips for More Comfortable Living , and a Product Directory listing products available for treating Sjogren's Symptoms. Serial publication: The Moisture Seekers (newsletter), 11 times a year--articles on the many symptoms and complications of Sjogren's Syndrome, living and coping with Sjogren's, patient questions and experts' answers, the latest research, and much more. Books, such as "The New Sjogren's Syndrome Handbook" published by the Foundation and Oxford University Press are available for a fee.
Wednesday, Aug 11, 2010