email@example.com www.ctf.org Other Contact Information
95 Pine Street, 16th Floor
New York, NY 10005-1703
1-800-323-7938 (Voice - Toll-free) 212-344-6633 (Voice) 212-747-0004 (FAX) Description
The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).
The mission of The Children's Tumor Foundation is to: Encourage and support research and the development of effective treatments for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; Assist in the development of clinical centers, best practices, and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.
The Foundation publishes an information booklet for patients and families, a question-and-answer pamphlet, an information booklet about the child with neurofibromatosis type 1 (NF1), an information booklet about the adolescent with NF1, and an information booklet about neurofibromatosis type 2 (NF2), Facing Neurofibromatosis: A Guide for Teens and Achieving in Spite of...A booklet on Learning Disabilities. Serial publication: Lay newsletter, quarterly; research newsletter, quarterly.
Sunday, Apr 01, 2012