www.oif.org/ firstname.lastname@example.org Other Contact Information
804 West Diamond Avenue, Suite 210
Gaithersburg, MD 20878
1-800-981-2663 (Voice - Toll-free) 301-947-0083 (Voice) 301-947-0456 (FAX) Description
The Osteogenesis Imperfecta Foundation is a voluntary national health organization dedicated to improving the quality of life for individuals affected by OI through education, awareness, mutual support and research into improved treatments and an eventual cure. Resources and programs include a quarterly newsletter, a physician information service, written literature, informative videos, a pen pal program for children, national conferences, and local support groups. Research grants are awarded each year. Osteogenesis imperfecta is a highly variable, inherited disorder whose main feature is fragile bones, which fracture easily. Other symptoms may include blue sclerae, hearing loss, loose joints, lax ligaments and short stature. Many individuals with OI have only some- not all - of the clinical features.
The OI Foundation publishes books, pamphlets and fact sheets that provide information about osteogenesis impertecta for adults and children who have the disorder, their families, medical professionals and other members of the community. Videos are also available. A quarterly newsletter, "Breakthrough," provides advice on coping with OI and news on developments in research and treatment. Additional resources are available through the OI Foundation's website.
Tuesday, Nov 15, 2011