www.fanconi.org/ firstname.lastname@example.org Other Contact Information
1801 Willamette Street
Eugene, OR 97401
1-888-326-2664 (Voice - Toll-free) 541-687-4658 (Voice) 541-687-0548 (FAX) Description
Fanconi Anemia Research Fund, Inc., is a nonprofit corporation established in 1989. It is committed to providing education and support services to families around the world affected by FA. The Fund sponsors a variety of programs and services to assist the FA patients and their families. The Fanconi Anemia Research Fund manages two online Support Groups, which allows adults with FA and families affected by FA to exchange questions and information with others affected by FA. The Fund provides education to those affected by FA. The Annual Family Meeting brings specialists and families together, providing parents and adults with FA with the latest information on health care guidelines, as well as giving children with FA opportunities for leisure activities in a supportive environment.
The Fanconi Anemia Research Fund is dedicated to providing meaningful, up-to-date publications to help educate affected families and clinicians about FA. Available publications include: FA Courier—The FA Courier helps to connect the FA community to current FA-related research projects; Fanconi Anemia: A Handbook for Families and Their Physicians, Third Edition, 2000; semi-annual Family Newsletter; Fanconi Anemia: Guidelines for Diagnosis and Management, Third Edition, 2008; International Treatment and Testing Resource Guide.
Visit http://www.fanconi.org/index.php/publications for more information
Thursday, Jun 09, 2011