U.S. Department of Health and Human Services

Shwachman-Diamond Syndrome Foundation - SSS

Organization URL(s)


Other Contact Information

127 Western Avenue
Sherborn, MA 01770
1-888-825-7373 (Voice - Toll-free)


The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.

Print Resources

Books, pamphlets and periodicals/newsletters are available. Italian, Dutch and French language materials are also available. There is no charge for items.

Review Date

Tuesday, Aug 17, 2010