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Xeroderma Pigmentosum Society - XPS

Organization URL(s)

xps@xps.org
www.xps.org

Other Contact Information

437 Snydertown Road
Craryville, NY 12521
518-851-2612 (Voice)
518-851-2612 (FAX)

Description

The Xeroderma Pigmentosum Society was founded to raise awareness about XP, a life-threatening, sun-sensitive, genetic disorder; to provide support to patients and their families through information, protection and services; and to promote research for a cure. XPS also offers a unique, international summer camp for families conducted in a UV-safe environment.

Print Resources

"Understanding XP"; newsletter, "XP Report" all at no charge.

Related Topics

Review Date

Thursday, Sep 09, 2010