Organization URL(s)
noonansyndrome.org
info@noonansyndrome.org
Other Contact Information
P.O. Box 145
Upperco, MD 21155
1-888-686-2224 (Voice - Toll-free)
410-374-5245 (Voice)
Description
Noonan Syndrome Support Group, Inc. (NSSG) is committed to providing support, current information, and understanding to those affected by Noonan syndrome, a condition often associated with congenital heart disease and short stature. NSSG is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences, support, networking, and information.
Print Resources
Noonan Syndrome News, quarterly newsletter; Members have access to the most recent articles published on Noonan Syndrome.
Related Topics
Review Date
Wednesday, May 25, 2011
