U.S. Department of Health and Human Services


Support Organization for Trisomy 18, 13 and Related Disorders - SOFT

Organization URL(s)


Other Contact Information

2982 South Union Street
Rochester, NY 14624-1926
1-800-716-7638 (Voice - Toll-free)
585-594-4621 (Voice)
585-594-1957 (FAX)


Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in trisomy 18, 13, and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. SOFT is committed to respect a family's personal decision in alliance with a parent-professional partnership. Annual Conference with free medical clinics.

Print Resources

T18 Brochure; T13 Brochure; SOFT Brochure; T18 Guidebook; T13 Guidebook; Care of the Infant and Child with T18, T13; Annual Newsletter. Softly Spoken, Softly Written poetry book. There are charges for publications.

Review Date

Monday, Oct 05, 2015