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Birth Defects

Get Enough Folic Acid

Folic acid can prevent birth defects of the baby’s brain or spine if a woman takes it before and during pregnancy.

Review Date: December 17, 2014

National Health Information Center - NHIC
U.S. Department of Health and Human Services

National Birth Defects Prevention Month Toolkit- (PDF)

Find information and ideas on how to raise awareness of birth defects and promote healthy pregnancies.

Review Date: March 09, 2013

National Health Information Center - NHIC
U.S. Department of Health and Human Services

Folic Acid: Questions and Answers

The purpose of these questions and answers is to educate women of childbearing age on the importance of consuming 400 micrograms of folic acid every day.

Review Date: January 29, 2013

National Center on Birth Defects and Developmental Disabilities, CDC

Frequently Asked Questions - Cleft Palate Foundation

If your baby is affected by cleft issues, these questions and answers may be helpful as you and baby begin your life together.

Review Date: October 29, 2014

Cleft Palate Foundation

Amniocentesis: March of Dimes

Amniocentesis is the most common prenatal test used to rule out certain birth defects and genetic disorders. The decision to have amniocentesis requires careful planning and thoughtful discussion with your family and doctor.

Review Date: October 07, 2014

March of Dimes Birth Defects Foundation

Birth Defects

This consumer information document provides general information on the various types of birth defects and includes causes, detection and diagnosis, treatment and prevention.

Review Date: October 07, 2014

March of Dimes Birth Defects Foundation

Cerebral Palsy (CP)

Information and guidance for parents of children with cerebral palsy. This web site provides a definition of cerebral palsy and discusses CP's causes, prevention, affect on development, treatment, educational implications, and coping strategies.

Review Date: February 14, 2013

The Nemours Foundation

Cleft Lip and Cleft Palate

Cleft lip/palate and isolated cleft palate are birth defects that affect the upper lip and roof of the mouth. Learn about other related health problems, treatments, and what to expect and do for babies born with these conditions.

Review Date: October 07, 2014

March of Dimes Birth Defects Foundation

Clinics - National Down Syndrome Congress

This page provides a link to each state medical clinic that provides assistance for parents with children affected by Down Syndrome.

Review Date: October 30, 2014

National Down Syndrome Congress

Down's Syndrome and Stuttering

This leaflet is designed to help people who have Down’s syndrome, or who care for and work with people who have Down’s syndrome to understand the problem of dysfluency in speech.

Review Date: November 19, 2012

Stuttering Foundation of America

Facts About Birth Defects

About one in every 33 babies is born with a birth defect. Not all birth defects can be prevented, but there are things that a woman can do before and during pregnancy to increase her chance of having a healthy baby, such as taking folic acid and preventing infections.

Review Date: February 12, 2013

National Center on Birth Defects and Developmental Disabilities, CDC

Facts About Down Syndrome

Find out some important facts, as well as the developmental aspects of Down Syndrome.

Review Date: November 26, 2014

National Down Syndrome Congress

Find a AACPDM Medical Professional

Search the American Academy for Cerebral Palsy and Developmental Medicine directory for medical professionals who treat cerebral palsy, developmental disorders and/or other childhood-onset disabilities.

Review Date: December 04, 2012

American Academy for Cerebral Palsy and Developmental Medicine

Find a Doctor who Treats Vascular Birthmarks

Click on the map to find a physician near you who specializes in treating birthmarks, hemangiomas, vascular malformations, and more.

Review Date: December 04, 2012

The Vascular Birthmarks Foundation

Folic Acid

Folic acid is a B vitamin. Our bodies use it to make new cells. Folic acid can also help prevent some major birth defects. Learn why everyone needs folic acid.

Review Date: January 29, 2013

National Center on Birth Defects and Developmental Disabilities, CDC

Guidance for Preventing Birth Defects

Many birth defects happen very early during pregnancy, sometimes before a woman even knows she is pregnant. Find steps a woman can take to get ready for a healthy pregnancy.

Review Date: October 05, 2011

National Center on Birth Defects and Developmental Disabilities, CDC

Healthy Babies Strong Futures: How Native Men Can Help Pregnant Women Be Alcohol Free- (PDF)

Native men can have an important role in preventing FASD.They can encourage women not to drink alcohol during pregnancy.

Review Date: November 28, 2012

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

How to Appeal an Insurance Denial or Request Out-of-Network Treatment- (PDF)

This is a guide for families denied treatment of a hemangioma, port wine stain, lymphatic malformation, venous malformation, or other vascular birthmark, tumor, or syndrome.

Review Date: March 30, 2011

The Vascular Birthmarks Foundation

Independent Living for People With Fetal Alcohol Spectrum Disorders - (PDF)

For persons with Fetal Alcohol Spectrum Disorders (FASD), daily activities, such as working, managing money, and maintaining a home, present huge challenges. Learn about assistance and support to help overcome these challenges.

Review Date: March 22, 2011

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

Low Birthweight

Low-birthweight babies are at increased risk for serious health problems. Learn what you can do to reduce your risk of having a low-birthweight baby.

Review Date: October 14, 2014

March of Dimes Birth Defects Foundation

Online Support - Congenital Heart Information Network

Find online support groups for individuals and families coping with heart and lung transplantation, congenital heart disease, Down Syndrome, Noonan Syndrome, and more.

Review Date: December 18, 2014

Congenital Heart Information Network

Pediatric Genetics: Newborn Screening

Learn why it's important to know your family health history, and how genetic counseling and newborn screening can help doctors find and treat a genetic condition early.

Review Date: January 25, 2013

National Center on Birth Defects and Developmental Disabilities, CDC

PKU (Phenylketonuria) In Your Baby

PKU (phenylketonuria) is an inherited disorder that, if untreated, causes mental retardation. Fortunately, through routine newborn screening, almost all affected newborns are diagnosed and treated early, allowing them to grow up with normal intelligence.

Review Date: October 07, 2014

March of Dimes Birth Defects Foundation

Spina Bifida

This fact sheet defines spina bifida, an incomplete closure of the spinal column. Three types of spina bifida, symptoms, characteristics, and successful integration of a child with spina bifida into school is discussed.

Review Date: December 24, 2012

National Dissemination Center for Children with Disabilities

Spina Bifida Fact Sheet

Spina bifida is the most common neural tube defect in the United States. Find information on the four types of spina bifida, causes, symptoms, diagnosis, treatment, and prevention of this disorder.

Review Date: December 24, 2012

NIH National Institute of Neurological Disorders and Stroke - NINDS

Test Your Folic Acid IQ

Take this short quiz to test your knowledge and learn more about folic acid.

Review Date: January 29, 2013

National Council on Folic Acid

The Healthy Baby Resource

Learning the dangers inherent in our modern world can help you avoid many harmful exposures and increase the chances of having a healthy baby. This site discusses prenatal care, nutrition, recreation and more.

Review Date: December 16, 2011

Birth Defect Research for Children, Inc.

Understanding Cleft Lip & Palate: Guide for New Parents (Video)

Download or order this free video featuring candid conversations with parents and insightful information from some of the world's leading craniofacial experts about cleft lip and palate.

Review Date: November 01, 2012

Foundation for Faces of Children

What Is Down's Syndrome?

What is the cause of Down Syndrome? What impact does it have on society? What other medical conditions are common among those with Down Syndrome? Find the answers to these questions here.

Review Date: November 19, 2012

National Down Syndrome Society

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