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Baby and Toddler Health

Health Resources and Services Administration Information Center

The HRSA Information Center provides publications, information, resources, and referrals about health care services for medically underserved individuals and populations. Live, online assistance is available between 8:30 a.m. and 5:00 p.m. eastern time, Monday through Friday, by accessing the HRSA Information Center’s (IC’s) Live Help service. Through the Information Center, health care professionals, policymakers, researchers, and members of the public can obtain material on HRSA-supported public health programs including maternal and child health, oral health, HIV/AIDS, community health, minority health, rural health, health professions training and the planning, development and delivery of high quality ambulatory health care in medically underserved areas. Information specialists provide information and referrals and the web site contains searchable databases of community health centers and health related organizations. Spanish-speaking information specialists are available.

Review Date: March 08, 2013

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Indian Health Service, U.S. Department of Health and Human Services

The Indian Health Service (IHS), an agency within the Department of Health and Human Services, is responsible for providing federal health services to American Indians and Alaska Natives. The provision of health services to members of federally-recognized tribes grew out of the special government-to-government relationship between the federal government and Indian tribes. This relationship, established in 1787, is based on Article I, Section 8 of the Constitution, and has been given form and substance by numerous treaties, laws, Supreme Court decisions, and Executive Orders. The IHS is the principal federal health care provider and health advocate for Indian people, and its goal is to raise their health status to the highest possible level. The IHS provides a comprehensive health service delivery system for approximately 2 million American Indians and Alaska Natives who belong to 566 federally recognized tribes in 35 states. Health services provided include medical, dental, and environmental health programs. Special program concentrations are in disease prevention and health promotion, alcoholism, substance abuse, suicide, accidents, maternal and child health, nutrition, and public health services.

Review Date: October 17, 2011

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Maternal and Child Health Bureau, Health Resources and Services Administration

The Maternal and Child health Bureau (MCHB) of the Health Resources and Services Administration (HRSA), Department of Health and Human Services (DHHS) administers a broad range of programs services to pregnant women, mothers, infants, children and their families — and children with special health care needs. The largest of the programs, the Maternal and Child Health Services Block Grant, includes State Formula Block Grants, Special Projects of Regional and National Significance (SPRANS), and Community Integrated Service Systems (CISS) projects. Other vital missions include Universal Newborn Hearing Screening, Traumatic Brain Injury, Healthy Start, Sickle Cell Service Demonstrations, Family to Family Health Information Centers, Emergency Medical Services for Children, and autism.

Review Date: August 03, 2011

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Maternal and Child Health Information Resource Center, Health Resources and Services Administration

The Maternal and Child Health Information Resource Center (MCHIRC) is dedicated to the goal of helping MCH practitioners on the Federal, State, and local levels to improve their capacity to gather, analyze, and use data for planning and policymaking.

Review Date: July 13, 2011

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National SUID/SIDS Resource Center

The National Sudden and Unexpected Infant/Child Death Resource Center (Resource Center) serves as a central source of information on sudden infant death and on promoting healthy outcomes for infants from the prenatal period through the first year of life and beyond. The Resource Center provides electronic, full-text access to a wide variety of publications, both those published by the Resource Center and those published by a wide variety of other organizations and agencies with expertise in SIDS, other infant or child death, pregnancy loss, bereavement and related topics.

Review Date: August 30, 2012

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NIH National Institute of Child Health and Human Development - NICHD

The NICHD is part of the National Institutes of Health (NIH), a component of the U.S. Department of Health and Human Services (HHS). The NICHD has primary responsibility for conducting and supporting basic, translational, and clinical research in the biomedical, behavioral, and social sciences related to child and maternal health, in medical rehabilitation, and in the reproductive sciences. Information specialists are available to answer your calls Monday through Friday, 8:30 a.m. to 4 p.m., EST.

Review Date: February 26, 2013

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NIH National Institute of Dental and Craniofacial Research - NIDCR

The National Institute of Dental and Craniofacial Research (NIDCR) was established in 1948 to improve oral, dental, and craniofacial health through research, research training, and dissemination of health information. NIDCR's National Oral Health Information Clearinghouse (NOHIC) is a resource for information on oral health topics and publications related to NIDCR research. Trained information specialists are available to respond to inquiries Monday through Friday, 8:30 am - 5:00 pm, EST.

Review Date: February 06, 2013

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American Academy of Pediatrics

The American Academy of Pediatrics (AAP), founded in 1930, is a professional association dedicated to the health, safety, and well-being of infants, children, and young adults. The AAP is concerned with the education of pediatric health professionals, advocacy for children, and continuing education. The Academy sponsors continuing education courses through its pediatrics review and education program, and provides scholarships to pediatric residents. The Academy works with various government agencies, associations and corporations to promote the cause of child health, and participates in special health education projects.

Review Date: December 05, 2011

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Association of Maternal and Child Health Programs

The Association of Maternal & Child Health Programs is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs. AMCHP's members directly serve women and children nationwide, and strive to improve the health of all women, infants, children and adolescents, including those with special health care needs, by administering critical public health education and screening services, and coordinating preventive, primary and specialty care. AMCHP's membership includes academic, advocacy and community based family health professionals, as well as families themselves.

Review Date: October 13, 2011

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Children's PKU Network

Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with newly diagnosed infants with PKU and other metabolic disorders. A referral service serves as a medium for sharing information on obtaining needed services. A Maternal PKU Express Pack is available to women with PKU. PKU is a rare metabolic disorder that affects approximately 1 in every 15,000 births in the United States. Although not curable, PKU is treatable by adherence to a strict diet, devoid of fats and aspartame.

Review Date: February 20, 2009

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Elizabeth Glaser Pediatric AIDS Foundation

The Elizabeth Glaser Pediatric AIDS Foundation seeks to prevent pediatric HIV infection and to eradicate pediatric AIDS through research, advocacy, and prevention and treatment programs. Foundation-supported research efforts around the world seek to improve the prevention, care, and treatment of pediatric HIV infection, train international research leaders to respond to the virus in children, and pursue the development of a pediatric HIV vaccine. The Foundation works with partners to provide accessible prevention, care, and treatment services for children, women, and families; researching and identifying better technologies and interventions for those in need; and documenting models that can be replicated throughout the world. The foundation is a global nonprofit organization with a global staff of nearly 1,300, more than 90 percent of whom are in the field.

Review Date: May 31, 2011

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First Candle/SIDS Alliance

First Candle/SIDS Alliance is a leading national nonprofit health organization dedicated to safe pregnancies and the survival of babies through the first years of life. With programs of research, advocacy and education, our priority is to eliminate stillbirth, sudden infant death syndrome (SIDS) and other sudden unexpected infant deaths (SUID). We also provide compassionate grief support, to anyone affected by the death of a baby, through a dedicated crisis hotline at 1-800.221.7437.

Review Date: February 14, 2013

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Food Allergy and Anaphylaxis Network

The mission of The Food Allergy & Anaphylaxis Network (FAAN) is to raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis (a life-threatening allergic reaction). FAAN is the world’s largest nonprofit organization providing patients information about food allergy and educational resources to schools, health professionals, restaurants, pharmaceutical companies, the food industry, and government officials.

Review Date: March 10, 2009

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International Lactation Consultant Association

The International Lactation Consultant Association (ILCA) is the professional association for International Board Certified Lactation Consultants (IBCLCs) and other health care professionals who care for breastfeeding families. ILCA membership is open to all who support and promote breastfeeding; you can join at anytime and do not need to be an IBCLC to become a member. The ILCA’s mission is to advance the profession of lactation consulting worldwide through leadership, advocacy, professional development, and research.

Review Date: January 20, 2012

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La Leche League International

La Leche League’s (LLL) mission is to help mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother. LLL believes that breastfeeding, with its many important physical and psychological advantages, is best for baby and mother and is the ideal way to initiate good parent-child relationships. La Leche League host events and provides programs to promote and support breastfeeding.

Review Date: January 05, 2012

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March of Dimes Birth Defects Foundation

The March of Dimes is the leading nonprofit organization for pregnancy and baby health. With chapters nationwide and its premier event, March for Babies®, the March of Dimes works to improve the health of babies by preventing birth defects, premature birth and infant mortality. The March of Dimes carries out their mission by investing in research and educating health care professionals, pregnant women and new moms. They also are there with support for families with a baby in newborn intensive care. For the latest resources and information, visit marchofdimes.com or nacersano.org.

Review Date: June 17, 2008

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Midwives Alliance of North America

Founded in 1982, the Midwives Alliance of North America (MANA) is an organization of North American midwives and their advocates. MANA's central mission is to promote midwifery as a quality health care option for North American families. The Alliance's goals are to: expand communication and support among North American midwives; form an identifiable and cohesive organization representing the profession of midwifery on a regional, national, and international basis; promote guidelines for the education of midwives and to assist in the development of midwifery education programs; promote research in the field of midwifery as a quality health care option; promote and support a woman's right to choose her care provider and place of birth; and promote public education and midwifery advocacy. Mothers Naturally is a public education program from the Midwives Alliance of North America.

Review Date: January 19, 2012

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National Healthy Mothers, Healthy Babies Coalition

This organization provides an innovative forum for collaborative partnerships of public and private organizations, employers, policymakers and consumers to promote and improve culturally and linguistically appropriate, community based services that foster healthy mothers, healthy babies and healthy families. From its inception, HMHB has focused attention on raising public awareness of the basic components of prenatal care--early care, good nutrition, avoidance of drugs--including not drinking and not smoking, and promotion of breastfeeding.

Review Date: February 02, 2011

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National Newborn Screening and Genetics Resource Center

The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics. The project is funded by the Health Resources and Services Administration (HRSA). The mission of the NNSGRC is to: 1) provide a forum for interaction between consumers, health care professionals, researchers, organizations, and policy makers in refining and developing public health newborn screening and genetics programs; and 2) serve as a national resource center for information and education in the areas of newborn screening and genetics.

Review Date: May 22, 2014

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National Organization on Fetal Alcohol Syndrome

The National Organization on Fetal Alcohol Syndrome (NOFAS) is the leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community. Founded in 1990, NOFAS is the only international non-profit organization committed solely to FASD primary prevention, advocacy and support. NOFAS seeks to create a global community free of alcohol-exposed pregnancies and a society supportive of individuals already living with FASD. NOFAS effectively increases public awareness and mobilizes grassroots action in diverse communities and represents the interests of persons with FASD and their caregivers as the liaison to researchers and policymakers. By ensuring that FASD is broadly recognized as a developmental disability, NOFAS strives to reduce the stigma and improve the quality of life for affected individuals and families.

Review Date: May 10, 2011

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National Perinatal Association

The National Perinatal Association (NPA) is a multidisciplinary group concerned with perinatal health issues from preconception through infancy. Our members foster optimal perinatal health and quality health care by promoting education, supporting research, and influencing national priorities. NPA sponsors an annual clinical conference, serves as an education and legislative resource center, and facilitates the education of health care professionals. As a coordinating body, NPA encourages the development of new perinatal organizations and promotes communication among existing groups.

Review Date: November 24, 2008

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Nevus Network

The Nevus Network, founded in 1983, is a support group to provide help and understanding to families whose lives have been touched by large birthmarks, called giant congenital nevi and a related condition called neurocutaneous melanosis. They attempt to place new contacts in touch with other members who have similar conditions. The services of the Nevus Network are free of charge.

Review Date: April 29, 2011

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PreemieCare

PreemieCare is a non-profit organization dedicated to supporting families of infants born preterm through education, support, and resources. PreemieCare is a division of MOST (Mothers of Supertwins), Inc. a non-profit parenting organization that provides information, education, support and additional resources for families of multiples. The mission of PreemieCare is to educate, support and offer additional resources for families of babies born preterm. PreemieCare has a special focus on RSV awareness and prevention. Issues such as breastfeeding preemies, parenting in the NICU, early intervention and much more are also addressed by PreemieCare, as are networking opportunites for preemie support groups.

Review Date: September 26, 2011

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Save Babies Through Screening Foundation, Inc.

Save Babies Through Screening Foundation is a national non-profit organization striving to provide information on newborn screening to parents and the medical community. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. The Foundation works to educate parents and professionals about newborn screening and disorders, which can be detected through currently available newborn screening programs. The Foundation supports, assists, and advocates for disorders that are detectable through filter paper newborn screening; are unlikely to be clinically diagnosed without screening; and cause mental retardation, physical disability and/or death in childhood when left untreated.

Review Date: May 12, 2011

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Spina Bifida Association of America

The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.

Review Date: May 13, 2010

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Support Organization for Trisomy 18, 13 and Related Disorders

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in trisomy 18, 13, and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. SOFT is committed to respect a family's personal decision in alliance with a parent-professional partnership. Annual Conference with free medical clinics.

Review Date: July 21, 2010

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The Simon Foundation For Continence

A nonprofit organization formed in 1983, the Simon Foundation for Continence is an educational organization dedicated to providing assistance and support to those suffering from urinary incontinence and their families. In addition, the Foundation promotes public awareness, reviews relevant legislation, and encourages the medical profession's interest in this condition. The Foundation attempts to help the 33 million Americans who suffer from incontinence by organizing self-help groups and distributing up-to-date information. Funds are raised by donations and membership fees. The Simon Foundation maintains three additional websites: http://www.innovatingforcontinence.org; www.managinglifewithincontinence.org; and www.continencecentral.org.

Review Date: February 10, 2011

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Zero to Three: National Center for Infants, Toddlers and Families

Zero to Three's urgent mission is to advance the healthy development of America's babies and young children. Zero to Three is a leading resource on the first three years of life and works to strengthen the critical roles of professionals, policymakers and parents in giving all children the best possible start. They focus on the first three years of life because this is the time of greatest human growth and development. It is also the time when caring adults have the greatest opportunity to shape a child's future.

Review Date: April 11, 2011

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