U.S. Department of Health and Human Services

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Administration on Aging

The Administration on Aging (AoA) is the Federal agency responsible for advancing the concerns and interests of older people and their caregivers. AoA works with and through the Aging Services Network to promote the development of a comprehensive and coordinated system of home and community-based long-term care that is responsive to the needs and preferences of older people and their family caregivers. AoA is part of the Department of Health and Human Services and is headed by the Assistant Secretary for Aging, who reports directly to the Secretary.

Review Date: July 28, 2011

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Centers for Medicare and Medicaid Services

The Centers for Medicare and Medicaid Services (CMS), formerly the Health Care Financing Administration (HCFA), administers Medicare, Medicaid, related quality assurance programs, and other programs. It also makes certain that its beneficiaries are aware of the services for which they are eligible, that services are accessible, and that they are provided in an effective manner. CMS ensures that its policies and actions promote efficiency and quality within the total health care delivery system. Questions concerning Medicare or Medicaid can be made to the above number or sent by mail or electronic mail to the agency.

Review Date: July 06, 2011

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NIH Alzheimer's Disease Education and Referral Center, National Institute on Aging

The Alzheimer's Disease Education and Referral (ADEAR) Center is a service of the federal government's National Institute on Aging (NIA), one of the National Institutes of Health. The Center provides accurate, up-to-date information about Alzheimer's disease (AD) and related disorders to patients and their families, caregivers, health care providers, and the public. The center operates a toll-free information and referral line, 1-800-438-4380, 8:30 a.m. to 5:00 p.m. Eastern time, Monday through Friday. Callers can get answers to basic questions about AD, caregiving, research findings, and treatment studies; free publications; and referrals to other organizations for additional information and services.

Review Date: March 08, 2013

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AARP

AARP is the nation's leading organization for people age 50 and older. It serves their needs and interests through information and education, advocacy, and community services provided by a network of local chapters and experienced volunteers throughout the country. The organization also offers members a wide range of special benefits and services, including Modern Maturity magazine and the monthly Bulletin.

Review Date: December 19, 2011

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Alzheimer's Association

The Alzheimer's Association is a nonprofit organization founded in 1980 to heighten public awareness of this degenerative brain disorder, provide support for patients and their families, aid research efforts, and advocate for legislation that responds to the needs of patients and family members of Alzheimer's Disease. The network includes more than 100 chapters and 1,800 support groups across the country. The Alzheimer's Association also maintains a toll-free 24-hour information and referral telephone number which provides information packets and referral to the nearest Association chapter. The Green-Field Library provides standard library services.

Review Date: January 02, 2009

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ARCH National Respite Network and Resource Center

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums. The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Training and Technical Assistance Center which is funded by the Administration on Aging (AoA) in the US Department of Health and Human Services.

Review Date: October 13, 2011

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Chapel Hill Training - Outreach Project, Inc.

CHTOP was established in 1969 with funding from the Federal government as part of our nation's earliest attempts to provide educational services to young children with disabilities. Under the direction of Anne R. Sanford, who was the founder of CHTOP, the strategies and materials developed by CHTOP during these early years became known as the Chapel Hill Model. The Model included assessment instruments, curricula, and strategies for parent involvement and family-centered programming. In 1983, the Chapel Hill Model was validated unanimously for "exemplary program status" by the U.S. Department of Education's Joint Dissemination Review Panel (JDRP). Recently the Chapel Hill Model was renamed The LAP System. Our mission is to develop and demonstrate programs and strategies that will enhance the lives of children and families. Of principal concern to project staff are families in poverty, families caring for the elderly, children with disabilities or chronic illness, and children at risk of abuse and neglect.

Review Date: February 14, 2013

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Family Caregiver Alliance

Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers. Family Caregiver Alliance is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy. Uniting research, policy and practice, FCA established the National Center on Caregiving (NCC) to advance the development of high-quality, cost effective programs and policies for caregivers in every state in the country.

Review Date: June 09, 2011

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Helpguide

Helpguide is a project of the Rotary Club of Santa Monica and WISE & Healthy Aging. Helpguide’s mission is to empower you and your loved ones to understand, prevent, and resolve health challenges. Helpguide’s purpose is the advancement of education regarding mental and physical wellness.

Review Date: January 27, 2012

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Hospice Patients Alliance, Inc.

Hospice Patients Alliance, Inc. (HPA) was formed by hospice staff and other health care professionals to promote quality hospice services for all patients, whether enrolled in a licensed hospice, residing at home or in a facility. HPA provides information about hospice services, directly assists patients, families and caregivers in resolving difficulties with hospice services, and promotes better quality hospice care throughout the United States.

Review Date: March 13, 2013

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Institute for Family-Centered Care

The Institute for Patient- and Family-Centered Care advances the understanding and practice of patient- and family-centered care. In partnership with patients, families, and health care professionals, the Institute seeks to integrate these concepts into all aspects of health care. The Institute accomplishes its mission through education, consultation, and technical assistance; materials development and information dissemination; research; and strategic partnerships. The Institute for Patient- and Family-Centered Care is a non-profit organization founded in 1992.

Review Date: May 27, 2011

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ManageCancer.org

ManageCancer.org is a service provided by Christina’s Garden, a 501(c)(3) non-profit organization created to assist those battling cancer. Their free cancer resource website provides cancer patients and their loved ones with information and links to valuable resources to assist with finances, medication and doctor schedules, communication, support, assistance, education, travel, housing and more. They also provide suggestions on ways that loved ones can help.

Review Date: March 22, 2013

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National Adult Day Services Association

The National Adult Day Services Association (NADSA) is the leading voice of the rapidly growing adult day services (ADS) industry and the national focal point for ADS providers. Members include adult day center providers, state associations of providers, corporations, educators, students, retired workers and others interested in working to build better lives for adults in adult day programs every day.

Review Date: October 13, 2011

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National Alliance for Caregiving

Established in 1996, The National Alliance for Caregiving is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.

Review Date: April 20, 2011

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National Association of Area Agencies on Aging

The National Association of Area Agencies on Aging (N4A) is a private, nonprofit organization that represents the interests of approximately 629 Area Agencies on Aging and more than 18,000 title VI native American aging programs across the nation in dealing with the Congress, the Administration, and other national organizations. It provides leadership to the member Area Agencies by providing technical assistance, materials, information, and training. It encourages cooperation between the public and private sectors in serving the elderly. It serves as a clearinghouse for the exchange of information on programs, legislation, and resources in the private sector.

Review Date: September 29, 2009

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National Association of Professional Geriatric Care Managers

NAPGCM was formed in 1985 as the “National Association of Private Geriatric Care Managers.” Membership consisted of approximately 50 members (mostly nurses and social workers), who were business owners and who had a minimum of a Master’s Degree in a Human Resource Management field and two years of supervised experience in a geriatric care setting. The association was seen as a trade association — one dedicated to growing the businesses of members and to position those members to capture a large market share of this newly emerging field called “geriatric care management.” The organization's mission is to advance professional geriatric care management through education, collaboration, and leadership.

Review Date: January 20, 2012

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National Family Caregivers Association

The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

Review Date: April 24, 2012

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National Stroke Association

The National Stroke Association (NSA), founded in 1984, is a nonprofit organization dedicated to educating stroke survivors, families, health care professionals, and the general public about stroke. It seeks to reduce the incidence and impact of stroke through activities related to prevention, medical care, research, rehabilitation, and resocialization. NSA develops and distributes educational materials and a new full color magazine "Stroke Smart"; publishes a stroke journal; operates a national clearinghouse for information and referral; promotes research and disseminates research findings; advocates; develops workshops; provides guidance in developing stroke clubs and stroke support groups; operates a Stroke Center Network program to help professionals provide the best services to stroke patients; and offers a Clinical Trials Acceleration Program.

Review Date: March 09, 2011

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Pulmonary Hypertension Association

The Pulmonary Hypertension Association (PHA) is a non-profit health organization, serving patients with pulmonary hypertension, their family members and the medical professionals who treat them. Its mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, and advocacy and awareness. PHA provides ongoing educational opportunities for patients and the medical community; the chance for patients to connect with others through support groups and online communities; print and online newsletters; and numerous other resources. PHA also funds cutting-edge research on pulmonary hypertension in collaboration with the National Heart, Lung, and Blood Institute, the American Thoracic Society and the American Heart Association. Pulmonary Hypertension is a simplified name for a complex health problem: high blood pressure in the lungs. It is a rare and currently incurable, but increasingly treatable condition that affects both genders and people of all ages and ethnic backgrounds.

Review Date: October 18, 2011

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Rosalynn Carter Institute for Caregiving

The Rosalynn Carter Institute for Caregiving was formed in honor of First Lady Rosalynn Carter in 1987. Through research, education, and training, the RCI promotes the mental health and well-being of individuals, families, and professional caregivers; promotes effective caregiving practices; builds public awareness of caregiving needs; and advances public and social policies that enhance caring communities. These goals are met by forming partnerships with professionals, groups, and individuals to deliver education and training programs, research and program evaluation around care needs, and policy and advocacy efforts that promote healthy individual development and increased community caregiving capacity.

Review Date: December 15, 2008

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The Scott Hamilton CARES Initiative (CARES)

The Scott Hamilton CARES Initiative (CARES) was founded in 1999 as a partnership between Scott Hamilton, Olympic ice-skating champion and cancer survivor, and the Cleveland Clinic Taussig Cancer Institute where he was treated. CARES was created to promote cancer awareness while raising significant funds for cancer research. Key components of CARES include 4th Angel Mentoring Program – designed to match newly diagnosed patients with trained volunteers who are also cancer survivors and to match a caregiver of a cancer survivor to a current caregiver of a cancer patient; Chemocare.com – a unique website designed to help patients better understand the chemotherapy experience; Research Funding and Annual Ice show and Gala – the primary fundraising event for CARES.

Review Date: August 23, 2011

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