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Cancer in Children

Centers for Disease Control and Prevention - CDC
U.S. Department of Health and Human Services

The Centers for Disease Control and Prevention (CDC), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting public health activities in the United States. CDC's Mission is to collaborate to create the expertise, information, and tools that people and communities need to protect their health – through health promotion, prevention of disease, injury and disability, and preparedness for new health threats. CDC is composed of the Office of the Director, the National Institute for Occupational Safety and Health, Center for Global Health, and five Offices, including Public Health Preparedness and Response; State and Local Support; Surveillance, Epidemiology and Laboratory Services; Noncommunicable Diseases, Injury and Environmental Health; and Infectious Diseases. CDC employs more than 15,000 employees in more than 50 countries and in 168 occupational categories.

Review Date: February 27, 2013

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NIH Pediatric Oncology Branch, National Cancer Institute

The Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute is part of the National Institutes of Health (NIH). This division provides patients, families and physicians with an overview of the type of treatments available for children with cancer, and of the research conducted by investigators at the Pediatric Oncology Branch. Patients who participate in clinical protocols are treated at the Clinical Center located on the NIH campus in Bethesda, Maryland.

Review Date: August 30, 2011

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American Childhood Cancer Organization

American Childhood Cancer Organization (ACCO), formerly known as Candlelighters Childhood Cancer Foundation, began in 1970 by a group of parents whose children had been diagnosed with cancer. They came together to lobby for more research, and to support each other through the diagnosis and treatment of this life threatening disease at a time when very few children survived. Today, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families. ACCO has over 40 local affiliate organizations across the country providing direct services to the families in their communities.

Review Date: October 13, 2011

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Association for Research of Childhood Cancer

The Association for Research of Childhood Cancer (AROCC) is a nonprofit organization, staffed by volunteers, formed in 1971 by parents who had lost children to pediatric cancer. The seven charter members determined to raise funds by various projects in order to provide "seed money" to various pediatric research centers in order to find a cure and, ultimately, prevent the types of cancer that attack children. Funds are also obtained from community activities; memorial contributions; and donations from businesses, private foundations, and concerned individuals. As a parent support group AROCC aids parents of young cancer victims by distributing information on treatment, emotional aspects, and patient services via their publications.

Review Date: January 15, 2009

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Brain Tumor Foundation for Children, Inc.

The Brain Tumor Foundation for Children provides emotional and informational support to families of children with brain tumors, educates the public and increases awareness of the disease, and raises funds to support research for a cure and for the improvement in the treatment and quality of life of the victims of pediatric brain tumor disease.

Review Date: January 07, 2009

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Children’s Brain Tumor Foundation

This national non-profit organization was founded in 1988 by a group of dedicated parents, physicians and friends to improve the treatment, quality of life and the long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. Over four million dollars have been given out for cutting edge research projects at leading medical institutions across the country. Support services include the Parent-to-Parent Network, telephone support groups, educational teleconferences and referrals to social services.

Review Date: February 09, 2009

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Children's Cancer & Blood Foundation

The Children's Blood Foundation (CBF) was founded in 1952 as a philanthropic organization to support the Division of Pediatric Hematology and Oncology. The Division of Pediatric Hematology and Oncology at the New York Hospital-Cornell Medical Center is the sole beneficiary of CBF's committed efforts. Major emphasis is on blood diseases affecting children: leukemia, thalassemia, hemophilia, sickle cell anemia, platelet disorders, retinoblastoma, and AIDS. CBF trains physicians and hematology nurse clinicians in the treatment of blood diseases. Other CBF activities include a hemophilia home care program, group discussions for parents and patients, genetic counseling and screening, and public education.

Review Date: February 20, 2009

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Children's Hospice International

Children's Hospice International (CHI) was founded in 1983 as a non-profit organization to promote hospice support through pediatric care facilities -- providing support and resources for children with life-threatening conditions and their families. CHI also provides education, training and technical assistance (such as international conferences) to the health care professionals who care for this patient population.

Review Date: October 05, 2011

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Children's Leukemia Research Association, Inc.

The association raises funds on the national level to provide financial aid for the medical expenses of leukemia patients and funds research to help find the causes of and cures for leukemia. Patient financial aid is available for drugs, lab fees, blood, x-ray therapy, and other expenses not covered by insurance. Patients applying for aid must submit applications and letters of diagnosis from their doctors.

Review Date: February 18, 2009

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CureSearch for Children's Cancer

CureSearch for Children's Cancer is a national non-profit foundation whose mission is to fund and support targeted and innovative children's cancer research with measurable results, and is the authoritative source of information and resources for all those affected by children's cancer.

Review Date: February 26, 2013

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Make-A-Wish Foundation

This is a nonprofit organization that grants the wishes of children with terminal and life-threatening illnesses. From the organization's home page, users can link to general background information about the organization, a list of supporters, instructions for submitting and granting wishes, and personal accounts of wishes that have been previously granted.

Review Date: March 17, 2011

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National Children's Cancer Society

Founded in 1987, the National Children's Cancer Society (NCCS) is a nonprofit organization whose mission is to provide direct financial support to children with cancer and their families, for expenses related to cancer treatment. NCCS serves as a financial, emotional and educational resource for those in need at every stage of illness and recovery. Their Pediatric Oncology Program provides financial and emotional support to families who have a child with cancer. Beyond the Cure was established to help childhood cancer survivors integrate the cancer experience into their lives. This includes educating survivors on the challenges that lie ahead and most importantly, to celebrate survivorship.

Review Date: July 14, 2014

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National Children's Leukemia Foundation

The National Children's Leukemia Foundation (NCLF) is a national, non-profit organization whose mission to provide a wide variety of services, support, and referrals to leukemia patients and their families. Through it's toll-free hotline NCLF offers comprehensive information to any caller, and provide referrals for initial testing, physicians, hospital admissions, and treatment options.

Review Date: June 07, 2011

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NIH National Cancer Institute

The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS). The NCI is the Federal Government's principal agency for cancer research and training. It coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Review Date: August 03, 2011

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Oncology Nursing Society

The Oncology Nursing Society, ONS, was officially incorporated in 1975. ONS is a national specialty nursing organization of more than 33,000 registered nurses and other healthcare professionals dedicated to excellence in patient care, teaching, research and education in the field of oncology. The mission of ONS is to promote excellence in oncology nursing and quality cancer care.

Review Date: August 26, 2008

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Starlight Children’s Foundation

Starlight Children's Foundation is dedicated to improving the quality of life for children around the globe with chronic and life-threatening illnesses and life-altering injuries by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness. Starlight offers a comprehensive menu of outpatient, hospital-based and Web offerings to provide ongoing support for children and families - from diagnosis through the entire course of medical treatment. Programs have been proven to distract children from their pain, help them better understand and manage their illnesses, and connect families with others facing similar challenges so that no one feels alone.

Review Date: April 26, 2012

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The Nemours Foundation

Since 1940, the Foundation has operated non-profit health care institutions. It provides health care services to the children of Delaware, Florida and the surrounding states; and selected health services for the elderly of Delaware, regardless of their financial means. Operationally, The Nemours Foundation is a not-for-profit knowledge corporation, which conducts nonprofit programs and excels in the provision of health, education and research services. Nemours provides health education through KidsHealth, a Web site dedicated to the health of children, research and professional education, prevention through Nemours Health and Prevention Services, and adjunct programs dealing with detection and intervention such as Nemours BrightStart! Dyslexia Initiative.

Review Date: June 12, 2012

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