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Newborn Screening

Maternal and Child Health Bureau, Health Resources and Services Administration

The Maternal and Child health Bureau (MCHB) of the Health Resources and Services Administration (HRSA), Department of Health and Human Services (DHHS) administers a broad range of programs services to pregnant women, mothers, infants, children and their families — and children with special health care needs. The largest of the programs, the Maternal and Child Health Services Block Grant, includes State Formula Block Grants, Special Projects of Regional and National Significance (SPRANS), and Community Integrated Service Systems (CISS) projects. Other vital missions include Universal Newborn Hearing Screening, Traumatic Brain Injury, Healthy Start, Sickle Cell Service Demonstrations, Family to Family Health Information Centers, Emergency Medical Services for Children, and autism.

Review Date: August 03, 2011

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American Association for Clinical Chemistry

AACC is an international scientific/medical society of clinical laboratory professionals, physicians, research scientists and other individuals involved with clinical chemistry and related disciplines. Founded in 1948, the society has nearly 9,000 members and is headquartered in Washington, DC. AACC’s vision is to provide leadership in advancing the practice and profession of clinical laboratory science and its application to health care. AACC offers many programs that address the scientific, clinical, technical, and management challenges facing laboratory professionals.

Review Date: November 14, 2011

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Genetic Alliance

Genetic Alliance is a nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes more than 1,000 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations.

Review Date: October 24, 2011

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March of Dimes Birth Defects Foundation

The March of Dimes is the leading nonprofit organization for pregnancy and baby health. With chapters nationwide and its premier event, March for Babies®, the March of Dimes works to improve the health of babies by preventing birth defects, premature birth and infant mortality. The March of Dimes carries out their mission by investing in research and educating health care professionals, pregnant women and new moms. They also are there with support for families with a baby in newborn intensive care. For the latest resources and information, visit marchofdimes.com or nacersano.org.

Review Date: June 17, 2008

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National Newborn Screening and Genetics Resource Center

The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics. The project is funded by the Health Resources and Services Administration (HRSA). The mission of the NNSGRC is to: 1) provide a forum for interaction between consumers, health care professionals, researchers, organizations, and policy makers in refining and developing public health newborn screening and genetics programs; and 2) serve as a national resource center for information and education in the areas of newborn screening and genetics.

Review Date: November 01, 2011

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Save Babies Through Screening Foundation, Inc.

Save Babies Through Screening Foundation is a national non-profit organization striving to provide information on newborn screening to parents and the medical community. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. The Foundation works to educate parents and professionals about newborn screening and disorders, which can be detected through currently available newborn screening programs. The Foundation supports, assists, and advocates for disorders that are detectable through filter paper newborn screening; are unlikely to be clinically diagnosed without screening; and cause mental retardation, physical disability and/or death in childhood when left untreated.

Review Date: May 12, 2011

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