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Bone Marrow Transplantation

Health Resources and Services Administration - HRSA
U.S. Department of Health and Human Services

The Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services, is the primary Federal agency for improving access to health care services for people who are uninsured, isolated or medically vulnerable. HRSA provides leadership and financial support to health care providers, and through its grantees, health care to uninsured people, people living with HIV/AIDS, and pregnant women, mothers and children. HRSA trains health professionals to improve systems of care in rural communities, and oversees organ, bone marrow and cord blood donation. It supports programs that prepare against bioterrorism, compensates individuals harmed by vaccination, and maintains databases that protect against health care malpractice and health care waste, fraud and abuse.

Review Date: July 26, 2011

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Healthcare Systems Bureau, Health Resources and Services Administration

HRSA's Healthcare Systems Bureau (HSB) protects the public health and improves the health of individuals through an array of programs that provide national leadership and direction in targeted areas. HSB oversees the nation’s organ, bone marrow and cord blood donation and transplantation systems, poison control and vaccine injury compensation programs, and a drug discount program for certain safety-net health care providers. HSB's Organ Donation and Transplantation programs extend and enhance the lives of individuals with end-stage organ failure for whom an organ transplant is the most appropriate therapeutic treatment. HSB also manages Hill-Burton free or reduced-cost care programs.

Review Date: August 02, 2011

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Aplastic Anemia & MDS International Foundation, Inc.

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world. Programs include toll-free and online support from patient educators and peers, free educational materials and online learning, patient and family conferences, newsletters, clinical trials information, and volunteer-led community groups who raise awareness and support for AA&MDSIF programs.

Review Date: January 12, 2012

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Aplastic Anemia & MDS International Foundation, Inc.

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world. Programs include toll-free and online support from patient educators and peers, free educational materials and online learning, patient and family conferences, newsletters, clinical trials information, and volunteer-led community groups who raise awareness and support for AA&MDSIF programs.

Review Date: January 12, 2012

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Asian American Donor Program

Asian American Donor Program (AADP) is a National Marrow Donor Program (NMDP) recruitment agency which provides education regarding the issue of unrelated marrow donation, and opportunities for the general public to participate on the National Registry. The Asian American Donor Program is funded by NMDP to encourage everyone, specifically the minority communities to be HLA-typed (Human Leukocyte Antigen-typed). AADP staff provide educational presentations and organize typing drives for universities, corporations, churches, community service groups, etc.

Review Date: January 07, 2009

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Be The Match®

For people with life-threatening blood cancers - like leukemia and lymphoma - or other diseases, a cure exists. Be The Match connects patients with their donor match for a life-saving marrow or umbilical cord blood transplant. People can be someone’s cure as a member of the Be The Match Registry®, financial contributor or volunteer. Be The Match provides patients and their families one-on-one support, education, and guidance before, during and after transplant. Be The Match is operated by the National Marrow Donor Program® (NMDP), a nonprofit organization that matches patients with donors, educates health care professionals and conducts research so more lives can be saved. To learn more about the cure, visit BeTheMatch.org or call 1 (800) MARROW-2. Learn more at 1-888-999-6743.

Review Date: March 20, 2013

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Blood & Marrow Transplant Information Network

Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

Review Date: April 12, 2012

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Bone Marrow Foundation

The Bone Marrow Foundation is dedicated to improving the quality of life for bone marrow, stem cell and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs. The Foundation does not limit assistance to a specific disease, type of transplant, or age range. Patients and families considering or going through a bone marrow transplant can access general information and counseling services via the Foundation's website or by calling the toll-free information line.

Review Date: September 15, 2011

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Center for International Blood and Marrow Transplant Research

CIBMTR collaborates with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research worldwide. A combined research program of the National Marrow Donor Program® and the Medical College of Wisconsin, CIBMTR facilitates critical research that has led to increased survival and an enriched quality of life for thousands of patients. Our prospective and observational research is accomplished through scientific and statistical expertise, a large network of transplant centers and a clinical database of 350,000 transplant recipients. CIBMTR has a broad range of research activities, but their focus is narrow. Patients. They are the reason CIBMTR exists. Patients count on CIBMTR to discover and apply the best therapies that research has identified, and to never let up in our efforts to improve those therapies. The Center's activities include the following: Lead and conduct research studies;collect and maintain outcomes data; provide access to outcomes data; provide access to research repository samples; provide statistical expertise to researchers; provide education, guidelines and training.

Review Date: March 30, 2012

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Corporate Angel Network, Inc.

Corporate Angel Network (CAN) arranges free air transportation for cancer patients, bone marrow donors/recipients, and stem cell donors/recipients traveling to recognized treatment centers throughout the U.S. Patients are flown by CAN's participating corporations, using empty seats on their corporate jets. CAN, a not-for-profit organization, responds to inquiries from the public by telephone, mail, and electronically. Patients must be ambulatory and not on any life-support, such as oxygen or IV. Financial need is not a requirement for eligibility.

Review Date: January 27, 2012

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National Bone Marrow Transplant Link

nbmtLINK is a 501 (c) (3) nonprofit organization dedicated to serving individuals before, during, and after a bone marrow or stem cell transplant. nbmtLINK has been linking curing and caring since 1992. The mission of nbmtLINK is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. All of our resources have been reviewed by professionals from transplant centers and organizations from around the country. To order any of the resources listed below, or to find out more about our programs please visit www.nbmtlink.org or call 800-LINK-BMT. Our publications can be downloaded for free from our website.

Review Date: May 31, 2011

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