U.S. Department of Health and Human Services


Digestive Disease National Coalition

The Digestive Disease National Coalition is an advocacy organization comprised of several national voluntary and professional societies concerned with digestive diseases. The DDNC focuses on improving public policy related to digestive diseases and increasing public awareness with respect to the many diseases of the digestive system. Founded in 1978, the DDNC's purpose is to improve access to and the quality of digestive disease health care in order to promote the best possible medical outcome and quality of life for current and future patients with digestive diseases.

Review Date: Monday, December 08, 2008

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Futures Without Violence

Everyone has the right to live free of violence. Futures Without Violence, formerly Family Violence Prevention Fund, works to prevent and end violence against women and children around the world. Creating futures without violence has been the organization’s vision for over thirty years. From domestic and dating violence, to child abuse and sexual assault, Futures Without Violence works to end some of the most pressing global issues of our time. In 1994, Futures Without Violence was instrumental in developing the landmark Violence Against Women Act passed by the US Congress. Striving to reach new audiences and transform social norms, Futures Without Violence trains professionals such as doctors, nurses, athletic coaches, and judges on improving responses to violence and abuse. In addition, Futures Without Violence works with advocates, policy makers and others to build sustainable community leadership and educate people everywhere about the importance of respect and healthy relationships – the relationships that all individuals, families, and communities need and deserve.

Review Date: Thursday, May 22, 2014

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National Consumers League

The National Consumers League (NCL) is America’s oldest consumer organization, representing consumers and workers on marketplace and workplace issues since our founding in 1899. NCL provides government, businesses, and other organizations with the consumer’s perspective on concerns including child labor, privacy, food safety, and medication information. NCL is home to the LifeSmarts program, Child Labor Coalition, NCL’s Fraud Center, and SOS Rx Coalition. NCL is a private 501(c)(3) membership organization.

Review Date: Thursday, June 26, 2008

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National Council on Aging

Founded in 1950, the National Council on the Aging is the nation's first charitable organization to serve as a national voice and powerful advocate on behalf of older Americans. NCOA is an innovator, developing programs such as BenefitsCheckUp, Foster Grandparents and Family Friends. NCOA is an activator, working with thousands of its community organization members nationwide to provide needed services to older people. NCOA is a private, nonprofit association of some 3,500 member organizations and individuals that include senior centers, area agencies on aging, employment services, congregate meal sites, faith congregations health centers, and senior housing. NCOA also includes a network of more than 17,000 organizations and individuals including its members, professionals and volunteers, service providers, consumer groups, businesses, government agencies, religious groups and voluntary organizations.

Review Date: Wednesday, July 09, 2008

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National Council on Alcoholism and Drug Dependence, Inc.

The National Council on Alcoholism and Drug Dependence, Inc.(NCADD), founded in 1944, is a national, nonprofit organization combating alcoholism, other drug addictions, and related problems. NCADD's major programs include prevention and education, public information, public policy advocacy, and publications. NCADD's network of more than 100 State and local nonprofit affiliates conduct similar activities in their areas and provide information and referral services to families and individuals seeking help with an alcohol- or other drug-related problem. NCADD sponsors National Alcohol Awareness Month in April and Alcohol and Other Drug-Related Birth Defects Week in May. NCADD operates a toll-free number, (800)NCA-CALL, for information about alcoholism and the name of the NCADD affiliate in your area.

Review Date: Wednesday, July 29, 2015

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National Council on Patient Information and Education

The National Council on Patient Information and Education (NCPIE) founded in 1982, is a nonprofit coalition of government, consumer, business, patient advocacy and public health organizations whose mission it is to stimulate and improve communication of information on the appropriate use of medicines between healthcare professionals and consumers. NCPIE believes medication misuse is the nation's "other" drug problem. The Council was established to serve as a forum for exchanging ideas, to encourage member organizations to develop and launch medicine communication campaigns, and to develop other methods of educating and informing consumers on the safe and appropriate use of medicines. NCPIE sponsors the online, annual "Talk About Prescriptions" (TAP) Month each October.

Review Date: Tuesday, May 01, 2012

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National Council on Problem Gambling, Inc.

The NCPG is the national advocate for programs and services to assist problem gamblers and their families. Their mission is to increase public awareness of pathological gambling, ensure the widespread availability of treatment for problem gamblers and their families, and to encourage research and programs for prevention and education. As an advocate for problem gamblers, NCPG does not take a position for or against legalized gambling, but concentrates on the goal of helping those with gambling problems. Their 34-year history of independence and neutrality makes the National Council the most credible voice on problem gambling issues. They do not accept any restrictions on the use of contributions except as provided under Federal and state non-profit guidelines.

Review Date: Thursday, December 11, 2008

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National Court Appointed Special Advocate Association

Founded in 1984, this organization's mission is to speak for the best interests of abused and neglected children in the courts. There are approximately 710 CASA programs across the country with some 42,000 women and men serving as volunteers in these programs. CASA programs evolved out of a WA judge's concern over making decisions about abused and neglected children's lives without sufficient information. He conceived the idea of using trained community volunteers to speak for the best interests of these children in court.

Review Date: Tuesday, October 06, 2015

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National Hospice and Palliative Care Organization

The National Hospice and Palliative Care Organization (NHPCO) is the oldest and largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. NHPCO also works closely with other organizations that share an interest in end of life care.

Review Date: Wednesday, June 01, 2011

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National Organization for Victim Assistance

The National Organization for Victim Assistance is a private, non-profit, 501(c)(3) organization of victim and witness assistance programs and practitioners, criminal justice agencies and professionals, mental health professionals, researchers, former victims and survivors, and others committed to the recognition and implementation of victim rights and services. NOVA serves as a national forum for victim advocacy in support of victim oriented legislation and public policy. In addition, NOVA serves individual victims and witnesses of crime, supports local victim assistance programs, and sponsors conferences and forums on victim assistance issues. The organization is supported by grants and membership fees and the sale of pamphlets and books from its information clearinghouse. NOVA also provides training and direct support to victims and survivors of disasters via its National Crisis Response Team project.

Review Date: Monday, December 27, 2010

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National Perinatal Association

The National Perinatal Association (NPA) is a multidisciplinary group concerned with perinatal health issues from preconception through infancy. Our members foster optimal perinatal health and quality health care by promoting education, supporting research, and influencing national priorities. NPA sponsors an annual clinical conference, serves as an education and legislative resource center, and facilitates the education of health care professionals. As a coordinating body, NPA encourages the development of new perinatal organizations and promotes communication among existing groups.

Review Date: Monday, November 24, 2008

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National Rehabilitation Association

National Rehabilitation Association (NRA) was founded in 1925 to promote the vocational rehabilitation of persons with disabilities through advocacy, professional development, and public education. State and federal legislation designed to meet the needs of persons with disabilities is promoted. Conferences, meetings, continuing education, and seminars are sponsored to improve treatment and rehabilitation methods. Membership also includes publications and participation in a special interest division dealing with job placement, independent living, counseling, vocational adjustment, rehabilitation instruction, administration, private sector rehabilitation, multicultural interests, or other topics of concern to members.

Review Date: Tuesday, November 25, 2008

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National Rural Health Association

The National Rural Health Association (NRHA) is a membership organization dedicated to the improvement of health care services in rural areas. NRHA acts as a clearinghouse for information on rural health issues and an advocate for rural positions with policymakers. NRHA sponsors the nation's largest annual conference on rural health.

Review Date: Thursday, August 20, 2015

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National Society of Genetic Counselors

The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communications. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC. Growth and development within the profession and the recognition of a unique identity provided the impetus for the formation of a responsive professional society. To that end, the National Society of Genetic Counselors was incorporated in 1979. The National Society of Genetic Counselors advances the various roles of genetic counselors in health care by fostering education, research, and public policy to ensure the availability of quality genetic services.

Review Date: Friday, January 27, 2012

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Nevus Outreach, Inc.

Nevus Outreach is a 501(c)(3) nonprofit corporation dedicated to improving awareness and providing support for people affected by large congenital melanocytic nevi (CMN), and finding a cure.

Review Date: Wednesday, May 25, 2011

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OWL - The Voice of Midlife and Older Women

The Older Women's League (OWL), founded in 1980, educates the public on issues affecting midlife and older women. Nationally, and through its local chapters, OWL educates and advocates on the issues of economic security, health reform, quality of life, and mental health care for older women. OWL is the only national membership organization to focus exclusively on critical issues facing women as they age.

Review Date: Wednesday, May 11, 2011

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Paralyzed Veterans of America

Paralyzed Veterans of America was founded following World War II to meet the needs of veterans who were paralyzed as a result of disease or injury to the spinal cord. Paralyzed Veterans is supported by donations from the general public. It works to ensure quality health care, rehabilitation, and full civil rights for veterans with spinal cord injuries or diseases, and all persons with a disability. Paralyzed Veterans supports legislation and advances in medicine and technology through various programs, departments and foundations such as: PVA Research Foundation; PVA Education Foundation; National Advocacy Program; National Legislation Program; National Veterans Benefits Program; and PVA National Sports and Recreation Program.

Review Date: Wednesday, October 14, 2015

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Parkinson's Disease Foundation- (PDF)

The Parkinson's Disease Foundation (PDF), founded in 1957, is a leading national presence in Parkinson’s disease research, patient education and public advocacy. PDF is working for the nearly one million people in the US living with Parkinson’s by funding promising scientific research and supporting people with Parkinson’s, their families and caregivers through educational programs and support services.

Review Date: Tuesday, January 24, 2012

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Partnership for Organ Donation

The Partnership for Organ Donation is an independent, non-profit organization dedicated to saving and improving lives by closing the gap between the number of organ transplants that are possible and the number of organ transplants that actually occur. The Partnership fulfills its mission by: researching, developing and delivering state-of-the-art programs to educate and motivate health professionals and the public to fulfill their roles in solving the organ donor problem; providing leadership in focusing health care professionals, policy makers, and the public on the most relevant issues and actions that will contribute to solving the organ shortage; and fostering collaboration among key organizations and groups to share information, coordinate efforts, and effect lasting improvements in organ donation.

Review Date: Tuesday, December 16, 2008

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Pedestrian and Bicycle Information Center

The Pedestrian and Bicycle Information Center (PBIC) was established in 1999 with the mission to improve the quality of life in communities through the increase of safe walking and bicycling as a viable means of transportation and physical activity. PBIC is part of the larger Bicycle and Pedestrian Program of the Federal Highway Administration’s Office of Human and Natural Environment. Through comprehensive Web sites, PBIC offers information and training to diverse audiences about health and safety, engineering, advocacy, education, enforcement, access, and mobility as it relates to pedestrians and bicyclists.

Review Date: Monday, July 26, 2010

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Points of Light Institute

Points of Light Institute inspires, equips and mobilizes people to take action that changes the world. The organization has a global focus to redefine volunteerism and civic engagement for the 21st century, putting people at the center of community problem solving. It operates three dynamic business units organized to innovate, incubate and activate new ideas: HandsOn Network, a network of 250 local affiliates across the country and around the world; generationOn, the youth service movement that ignites the power of kids to make their mark on the world; and AmeriCorps Alums, the national service alumni network that activates the next generation of service leaders.

Review Date: Thursday, January 19, 2012

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Project Inform

Project Inform represents HIV-positive people in the development of treatments and a cure, supports individuals to make informed choices about their HIV health, advocates for quality health care to respond to HIV and related conditions, and promotes medical strategies that prevent new infections. Working at the local, state and national levels since 1985, Project Inform lends an independent voice to ensure a thoughtful, compassionate response to the epidemic by government, academia, industry and the community, and we empower all individuals living with HIV to make fully informed health decisions in order to build quality of life.

Review Date: Wednesday, February 09, 2011

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PTA National Headquarters

The National PTA, founded in 1897, comprises 6.5 million members in the 50 States, Washington, DC, the European Congress, and Pacific Congress (serving the Department of Defense schools oversees). There are 26,000 local units. With a goal of bettering the life of children, the PTA serves as an advocate for children, educates parents, and provides services for children, families, and schools. Major health-related activities of the National PTA include, a school bus safety program, an Environmental Action Awareness project, the family and Community Critical Viewing Project, HIV prevention and education project, a violence prevention initiative, and a technology/internet safety program. Extensive materials generated by these projects are made available to the public through the National PTA Web site, Children First, http://www.pta.org.

Review Date: Thursday, June 26, 2008

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Sexuality Information and Education Council of the United States

The Sexuality Information and Education Council of the U.S. (SIECUS) is a national, private, nonprofit advocacy organization which affirms that sexuality is a natural part of living. Incorporated in 1964, SEICUS develops, collects, and disseminates information, promotes comprehensive education about sexuality, and advocates the right of individuals to make responsible sexual choices. The SIECUS Mary S. Calderone Library (non-circulating) includes over 5,000 books, 750 curricula, 200 periodicals, assorted pamphlets, and vertical files from 1964.

Review Date: Tuesday, July 15, 2008

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Society for Women's Health Research

The Society for Women’s Health Research (SWHR), a national non-profit organization based in Washington DC, is widely recognized as the thought leader in research on sex differences and is dedicated to improving women’s health through advocacy, education, and research. SWHR advocates for greater public and private funding for women’s health research and the study of sex differences that: affects the prevention, diagnosis and treatment of disease; encourages the appropriate inclusion of women and minorities in medical research studies; promotes the analysis of research data for sex and ethnic differences; and informs women, health care providers, and policy makers about contemporary women’s health issues through media outreach, congressional briefings, public education campaigns, conferences and special events.

Review Date: Tuesday, October 06, 2015

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The National Coalition on Health Care

The National Coalition on Health Care (NCHC) is the nation's largest and most broadly representative alliance working to improve America's health care. The Coalition is comprised of almost 100 groups employing or representing approximately 100 million Americans and united in mission for better, more affordable, and more equitable health care for all Americans. The Coalition brings together large and small businesses, labor unions, consumer groups, religious groups and primary care providers. Distinguished leaders from academia, business and government have also pledged their support of the Coalition's efforts.

Review Date: Thursday, December 29, 2011

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United Cerebral Palsy Associations

Founded in 1949, United Cerebral Palsy (UCP) is committed to change and progress for persons with disabilities. The national organization and its nationwide network of more than 100 affiliates in 37 states, and the District of Columbia, strive to ensure the inclusion of persons with disabilities in every facet of society - from the Web to the workplace, from the classroom to the community. As one of the largest health charities in America, UCP's mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities, through our commitment to the principles of independence, inclusion and self-determination. UCP strives to build a better world for tomorrow-today. The national office, located in Washington, DC, provides key services for its affiliates. On a national level, UCP takes an advocacy role on behalf of people with cerebral palsy and other disabilities, develops best-practice program models, supports medical and technological research and the training of professional and scientists, provides a toll-free information and referral service, conducts programs to educate the public about cerebral palsy and other disabilities, and provides services and assistance to UCP affiliates nationwide. UCP's more than 100 state and local affiliates provide a wide variety of direct programs and services to people with disabilities and assistive technology training and attainment, community living, individual and family support, social and recreational programs, advocacy, and information and referral services.

Review Date: Thursday, July 09, 2015

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Women's Sports Foundation

Founded in 1974 by Billie Jean King, the Women's Sports Foundation is a national charitable educational organization seeking to advance the well-being and leadership skills of girls and women through sports and physical activity. The Foundation's Participation, Education, Advocacy, Research and Leadership programs are made possible by gifts from individuals, foundations and corporations. Interested parties can contact the Foundation for information about its Speaker Service, Community Action Programs, grants and scholarships or membership via the Internet or Women’s Sports Infoline. The Foundation’s GoGirlGo! works across the country to improve the health of sedentary girls and to keep girls involved in physical activity.

Review Date: Friday, January 27, 2012

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