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Fetal Alcohol Syndrome Disorders

National Center on Birth Defects and Developmental Disabilities, CDC

The mission of the CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) is to promote the health of babies, children and adults and enhance the potential for full, productive living. The center includes three divisions - the Division of Birth Defects and Developmental Disabilities, the Division of Human Development and Disability, and the Division of Blood Disorders. It works to identify the causes of birth defects and developmental disabilities; help children to develop and reach their full potential; and promote health and well-being among people of all ages with disabilities, including blood disorders. NCBDDD seeks to accomplish these goals through research, partnerships, and prevention and education programs. .

Review Date: July 13, 2011

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NIH Eunice Kennedy Shriver National Institute of Child Health and Human Development Information Resource Center

The NICHD is part of the National Institutes of Health (NIH), a component of the U.S. Department of Health and Human Services (DHHS). The NICHD has primary responsibility for conducting and supporting basic, translational, and clinical research in the biomedical, behavioral, and social sciences related to child and maternal health, in medical rehabilitation, and in the reproductive sciences. Information specialists are available to respond to inquiries Monday through Friday, 8:30 a.m. to 4:00 p.m.

Review Date: July 26, 2011

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March of Dimes Birth Defects Foundation

The March of Dimes is the leading nonprofit organization for pregnancy and baby health. With chapters nationwide and its premier event, March for Babies®, the March of Dimes works to improve the health of babies by preventing birth defects, premature birth and infant mortality. The March of Dimes carries out their mission by investing in research and educating health care professionals, pregnant women and new moms. They also are there with support for families with a baby in newborn intensive care. For the latest resources and information, visit marchofdimes.com or nacersano.org.

Review Date: June 17, 2008

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National Council on Alcoholism and Drug Dependence, Inc.

The National Council on Alcoholism and Drug Dependence, Inc.(NCADD), founded in 1944, is a national, nonprofit organization combating alcoholism, other drug addictions, and related problems. NCADD's major programs include prevention and education, public information, public policy advocacy, and publications. NCADD's network of more than 100 State and local nonprofit affiliates conduct similar activities in their areas and provide information and referral services to families and individuals seeking help with an alcohol- or other drug-related problem. NCADD sponsors National Alcohol Awareness Month in April and Alcohol and Other Drug-Related Birth Defects Week in May. NCADD operates a toll-free number, (800)NCA-CALL, for information about alcoholism and the name of the NCADD affiliate in your area.

Review Date: June 26, 2008

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National Organization on Fetal Alcohol Syndrome

The National Organization on Fetal Alcohol Syndrome (NOFAS) is the leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community. Founded in 1990, NOFAS is the only international non-profit organization committed solely to FASD primary prevention, advocacy and support. NOFAS seeks to create a global community free of alcohol-exposed pregnancies and a society supportive of individuals already living with FASD. NOFAS effectively increases public awareness and mobilizes grassroots action in diverse communities and represents the interests of persons with FASD and their caregivers as the liaison to researchers and policymakers. By ensuring that FASD is broadly recognized as a developmental disability, NOFAS strives to reduce the stigma and improve the quality of life for affected individuals and families.

Review Date: May 10, 2011

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SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

The SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is a Federal initiative devoted to preventing and treating FASD. The Center’s web site provides information, resources about FASD and materials you can use to raise awareness about FASD. Additionally, the Center is dedicated to providing training, technical assistance, and conference/event speakers.

Review Date: August 21, 2012

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