The organizations listed here charge a fee for additional screening that may not be offered in your state. NNSGRC provides the following websites for information only, and does not imply endorsement of any particular company.
Review Date: November 01, 2011
National Newborn Screening and Genetics Resource Center
Ideally, both members of a couple should be screened prior to starting a family, or as soon as you learn of your pregnancy, to allow all available options to be considered. Testing is available for each of the 17 diseases included in the Ashkenazi Jewish screening panel.
Review Date: October 18, 2011
Mount Sinai Center for Jewish Genetic Diseases
Call 1-800-926-4797 for information and support for families after the initial diagnosis of Prader-Willi syndrome, a genetic cause of life-threatening obesity in children.
Review Date: January 29, 2012
Prader-Willi Syndrome Association - USA
Can’t find answers for an undiagnosed condition? The following information may help navigate through the process of trying to obtain a diagnosis.
Review Date: December 01, 2014
Genetic and Rare Diseases Information Center