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Lung Disorders

Bureau of Primary Health Care, Health Resources and Services Administration

HRSA’s Primary Health Care Programs have their roots in the Migrant Health Act of 1962 and the Economic Opportunity Act of 1964, which established funding for the first community-based clinics that were to become today’s Health Center Program. HRSA has helped fund, staff and support a national network of health clinics serving millions of people who otherwise would have little or no access to care. The National Hansen’s Disease Program, formerly the National Leprosarium, was established in 1921. More recently, the Free Clinics Medical Malpractice Program was established in 2004.

Review Date: June 27, 2011

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National Heart, Lung, and Blood Institute Information Center

The National Heart, Lung, and Blood Institute (NHLBI) Health Information Center is open Monday through Friday, 8:30 a.m. to 5 p.m. Eastern time (closed on Federal holidays.) Health Information Specialists are available to provide information on diseases of the heart, lung, and blood, and sleep disorders and accept orders for publications. The Health Information Center develops and maintains information on NHLBI topics to respond to inquiries, and supports and disseminates materials for NHLBI's national health education and awareness campaigns.

Review Date: July 14, 2011

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National Institute for Occupational Safety and Health - NIOSH
Centers for Disease Control and Prevention

The National Institute for Occupational Safety and Health (NIOSH) is a Federal agency established by the Occupational Safety and Health Act of 1970 with responsibility for conducting research and making recommendations for the prevention of work-related illness and injuries. The Institute's day-to-day functions include: investigating potentially hazardous working conditions as requested by employers or employees; evaluating hazards in the workplace, ranging from chemicals to machinery; creating and disseminating methods for preventing disease, injury, and disability; and conducting research and providing scientifically valid recommendations for protecting workers.

Review Date: July 20, 2011

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NIH National Heart, Lung, and Blood Institute - NHLBI

The primary responsibility of the National Heart, Lung, and Blood Institute (NHLBI) is the scientific investigation of heart, blood vessel, lung, and blood diseases. NHLBI oversees resources and research, demonstration, prevention, education, control, and sleep disorders and training activities in these fields. The program emphasizes the prevention and control of heart, lung, and blood diseases and sleep disorders, and education concerning these diseases through more rapid transfer of knowledge into the mainstream of clinical medicine and personal health practices. Inquiries related to high blood pressure, cholesterol, asthma, and blood diseases, as well as any information requests associated with cardiovascular disease prevention and heart-health promotion are handled by the National Heart, Lung, and Blood Institute Health Information Center.

Review Date: July 14, 2011

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NIH National Institute of Environmental Health Sciences - NIEHS

The mission of the NIEHS is to reduce the burden of human illness and disability by understanding how the environment influences the development and progression of human disease. To have the greatestimpact on preventing disease and improving human health, the NIEHS focuses on basic science, disease-oriented research, global environmental health, and multidisciplinary training for researchers. The NIEHS achieves its mission through: Extramural research and training, funded by grants and contracts, to scientists, environmental health professionals, and other groups worldwide, Intramural research conducted by scientists at the NIEHS facility and in partnership with scientists at universities and hospitals, Toxicological testing and test validation by the National Toxicology Program, and Outreach and communications programs that provide reliable health information to the public and scientific resources to researchers.

Review Date: July 12, 2011

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Occupational Safety and Health Administration, U.S. Department of Labor

Under the Occupational Safety and Health Act of 1970, the Occupational Safety and Health Administration (OSHA) was created to encourage employers and employees to reduce workplace hazards and implement new or improved safety and health programs; establish separate but dependent responsibilities and rights for employers and employees to achieve better safety and health conditions; maintain a reporting and record-keeping system to monitor job-related injuries and illnesses; develop mandatory job safety and health standards and enforce them; and provide for the development, analysis, evaluation, and approval of State occupational safety and health programs. The Act provides six distinct provisions for protecting the safety and health of Federal workers on the job. OSHA also encourages a broad range of voluntary workplace improvement efforts, including consultation programs, training and education efforts, grants to establish safety and health competence, and a variety of similar programs.

Review Date: June 08, 2011

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Office on Smoking and Health, National Center for Chronic Disease Prevention and Health Promotion

The Centers for Disease Control and Prevention (CDC), through its Office on Smoking and Health (OSH), is the lead federal agency for comprehensive tobacco prevention and control. OSH is a division within the National Center for Chronic Disease Prevention and Health Promotion, which is located within CDC’s Coordinating Center for Health Promotion. Originally established in 1965 as the National Clearinghouse for Smoking and Health, OSH is dedicated to reducing the death and disease caused by tobacco use and exposure to secondhand smoke.

Review Date: June 29, 2011

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Alpha-1- Association

The goal of this nonprofit organization is to further support, education, and research efforts for individuals and their families affected by alpha1-antitrypsin deficiency (A1AD).

Review Date: January 05, 2009

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American Academy of Family Physicians

The American Academy of Family Physicians (AAFP), originally the American Academy of General Practice, was founded in 1947 and has chapters in all States. Its purpose is to represent the interests of family physicians, provide opportunities for continuing education, and maintain high standards of family practice care. AAFP requires continuing education from its members and promotes the development of family practice medical education. A public education program is conducted to inform the public about family practice. Other activities include medical student services, annual meetings, and reduced insurance rates.

Review Date: July 01, 2009

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American Association for Respiratory Care

The AARC is a not-for-profit professional association representing more than 37,000 members. For more than 50 years, the AARC has led the respiratory care profession in science, education and research. Its members are committed to providing exemplary respiratory care and improving lung health worldwide. AARC’s mission is to advance the science, technology, ethics, and art of respiratory care through research and education for its members and to teach the general public about pulmonary health and disease prevention.

Review Date: December 05, 2011

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American College of Chest Physicians

The American College of Chest Physicians provides a multidisciplinary approach to the study of cardiovascular and pulmonary medicine, surgery, critical care and related fields for physicians. Programs of continuing medical education are offered to help physicians acquire new knowledge and improve the quality of care. Postgraduate courses are offered throughout the year at various locations in the United States and Canada. Most of the courses last for between 1 and 4 days.

Review Date: August 21, 2008

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American Lung Association

The American Lung Association (ALA), formerly the National Tuberculosis and Respiratory Disease Association, was founded in 1904 to combat tuberculosis. Since 1907, ALA has promoted Christmas Seals to raise public funds to fight lung disease, the third leading cause of death in America. ALA is primarily a health education agency, emphasizing anti-smoking and clean air activities to prevent and control lung hazards. Its self-management programs teach those suffering from lung disease, such as asthma, how to live with their condition. ALA also creates educational programs to teach lifelong good health habits, and it provides professional education to health care providers to help them deliver effective lung health care to their patients. ALA also awards grants for medical research and sponsors fellowships for young medical professionals to encourage them to specialize in pulmonary care. There are 110 State and local Lung Associations throughout the country. The American Thoracic Society is the medical arm of ALA.

Review Date: November 24, 2008

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American Thoracic Society

The American Thoracic Society (ATS) was founded in 1905 as an international, professional and scientific society which focuses on respiratory and critical care medicine. Today, the Society has approximately 12,500 members who help prevent and fight respiratory diseases through research, education, patient care and advocacy. The Society's long range goal is to decrease morbidity and mortality from respiratory disorders and life threatening acute illnesses.

Review Date: March 28, 2011

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Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation was established in 1955 to find new treatments for cystic fibrosis and ultimately the cure. The Foundation also strives to lengthen and improve the quality of life for cystic fibrosis patients, and to reduce the impact of the disease on the patient, the family, and society. The Foundation sets top priority on basic research and research training in cystic fibrosis and supports such research through grants, research scholar awards, new investigator research grants, research fellowships, and student traineeships. The Foundation also supports a network of 115 Cystic Fibrosis Care Centers, which provide the latest in specialized diagnosis and high quality care for these patients. The Foundation also serves as an advocacy organization for persons with the disease. DATABASE: The Foundation maintains a computerized registry of cystic fibrosis patient information for use by researchers and other scientists studying the disease.

Review Date: September 09, 2010

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Foundation for Sarcoidosis Research

The Foundation for Sarcoidosis Research (FSR) is a nonprofit organization dedicated to improving care for sarcoidosis patients and to finding a cure for this disease. Since establishment in 2000, FSR has worked diligently to provide resources to thousands of patients, their families and their physicians as well as funded several domestic and international research efforts. FSR has a long history of educating consumers and their health care professionals as well as providing direct support to critically needed research. FSR's annual K.I.S.S. (Kick In to Stop Sarcoidosis®)Awareness Campaign reaches hundreds of thousands with a combination of education events, print articles, televised health reports, and public service announcements.

Review Date: May 12, 2011

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International Society for Heart and Lung Transplantation

The International Society for Heart and Lung Transplantation (ISHLT) is a not-for-profit organization dedicated to the advancement of the science and treatment of end-stage heart and lung diseases. The purposes of the Society are: to associate persons interested in the fields of heart and lung transplantation, end-stage heart and lung disease, and related sciences; to encourage and stimulate basic and clinical research in these disciplines and to promote new therapeutic strategies; to hold scientific meetings featuring presentations and discussions relevant to these disciplines; to sponsor a scientific journal for the publication of manuscripts related to these disciplines; to establish and maintain an international registry for heart and lung transplantation; and to award research grants and establish endowments for the study of these disciplines.

Review Date: February 09, 2009

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International Ventilator Users Network

The mission of Post-Polio Health International, including International Ventilators Users Network is to enhance the lives and independence of polio survivors and home mechanical ventilator users by promoting education, networking, and advocacy among these individuals and healthcare providers. IVUN is a forum for ventilator users, their families, pulmonologists, pediatricians, respiratory therapists, ventilator manufacturers, and vendors to discuss unique problems of home ventilation and to cooperatively seek solutions.

Review Date: May 25, 2011

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Lung Cancer Alliance

Lung Cancer Alliance is the only national nonprofit organization advocating on behalf of lung cancer patients, survivors, families, and caregivers. Their mission is to lead the movement to reverse decades of stigma and neglect by empowering those with or at risk for the disease, elevating awareness and changing health policy. Programs include the Lung Cancer Hotline, a toll-free informational service for lung cancer patients and their caregivers; "Phone Buddies," a peer-to-peer support service; “LCA Survivors Community”, an online support community; “Lung Cancer Alliance Clinical Trials Matching Service”; "Lung Cancer Awareness Month," a national education and advocacy campaign; "Spirit and Breath," newsletter, and "Advocacy Alerts," to keep advocates informed.

Review Date: June 14, 2011

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National Jewish Medical and Research Center

The National Jewish Medical and Research Center, formerly the National Jewish Center for Immunology and Respiratory Medicine, was founded around the turn of the century to care for the victims of tuberculosis. The Hospital provided treatment for victims, while the Denver Sheltering Home (the Center's forerunner) provided care for children of victims. The two institutions merged in 1978 and now constitute the largest U.S. medical center devoted to the study and treatment of chronic respiratory diseases and immune system disorders, including asthma, emphysema, tuberculosis, chronic bronchitis, interstitial lung disease, juvenile rheumatoid arthritis, and lupus. Research activities cover an ever-broadening range of both basic and applied science, from examination of basic life processes to in-depth clinical studies of particular diseases. The Center provides an information service called LUNGLINE, (800)222-LUNG, for individuals with questions about lung diseases and allergies. Beyond the areas of study and treatment listed, LUNGLINE offers information on pneumonia, sarcoidosis, smoking, asbestosis, cystic fibrosis, occupational lung diseases, and other topics. Professional staff publish scientific papers and participate in seminars and conferences. In addition, the Center conducts a formal medical and research fellowship program to train young physicians and researchers in the latest methods of investigating and controlling these illnesses.

Review Date: January 13, 2011

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PHCentral

PHCentral.org has provided Information, Support and Advocacy since 1999, and is an all-volunteer, patient-managed 501(c)3 non-profit organization. The mission of PHCentral is to be the definitive internet resource for PH-related information for patients, caregivers, and medical professionals. The organization's mission includes: Guiding newly-diagnosed patients to answers and support; Presenting medical news from the popular media; Offering a forum for an array of opinions on PH topics; Providing practical tips and information for living with PH; Connecting patients, caregivers, family and friends with shared interests and talents; Gathering, critiquing, and linking to potentially useful internet resources and publications; Defining the roles of organizations within the international PH Resource Community: groups which offer support, education, advocacy, treatment development, or research toward a cure; Listening to your comments, getting you involved, responding to your needs. Site features include: Daily medical news updates; medical basics; a section for coping and connecting including a private, moderated message board; and links to many other useful resources. .

Review Date: March 20, 2013

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Pulmonary Fibrosis Foundation

The mission of the Pulmonary Fibrosis Foundation (PFF) is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community both locally and in Washington, D.C., promote disease awareness, and provide a compassionate environment for patients and their families. PFF provides a number of online resources for patients, caregivers and family members, including support group information, an archive of educational webinars, and listings of pulmonary fibrosis medical centers. PFF also makes print resources (patient handbooks, brochures and newsletters) available to the public.

Review Date: February 09, 2011

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Pulmonary Hypertension Association

The Pulmonary Hypertension Association (PHA) is a non-profit health organization, serving patients with pulmonary hypertension, their family members and the medical professionals who treat them. Its mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, and advocacy and awareness. PHA provides ongoing educational opportunities for patients and the medical community; the chance for patients to connect with others through support groups and online communities; print and online newsletters; and numerous other resources. PHA also funds cutting-edge research on pulmonary hypertension in collaboration with the National Heart, Lung, and Blood Institute, the American Thoracic Society and the American Heart Association. Pulmonary Hypertension is a simplified name for a complex health problem: high blood pressure in the lungs. It is a rare and currently incurable, but increasingly treatable condition that affects both genders and people of all ages and ethnic backgrounds.

Review Date: October 18, 2011

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The LAM Foundation

The LAM Foundation provides support, education, and hope to women with Lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease. Our goals are to organize, marshal the forces of the scientific community, raise LAM from obscurity, and conquer it in a decade. The Foundation holds an annual research conference in Cincinnati for physicians, scientists and patients. Research pilot projects are funded at $10,000-$25,000 and three-year fellowships are funded from $35,000-$50,000 each year.

Review Date: November 04, 2010

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White Lung Association

The White Lung Association, formed in 1979, is a national nonprofit organization dedicated to the education of the public to the hazards of asbestos exposure. The Association developed programs of public education and consults with victims of asbestos exposure, school boards, building owners, government agencies, and others interested in identifying asbestos hazards and developing control programs. The Association maintains a collection of print and audiovisual materials on asbestos. The Association is funded by donations and by fees for its services. The Association's over 45,000 members throughout the world are primarily victims of asbestos. The Association represents the needs and stories of asbestos victims from the public, the legislature and the courts.

Review Date: February 05, 2009

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