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Macular Degeneration

NIH National Eye Institute - NEI

The National Eye Institute (NEI), established in 1968, has primary responsibility within the National Institutes of Health for supporting and conducting research aimed at improving the prevention, diagnosis, and treatment of eye diseases. In addition, the NEI encourages the application of research findings to clinical practice, heightens public awareness of eye and vision problems, and cooperates with voluntary organizations that engage in related activities. The NEI coordinates the National Eye Health Education Program (NEHEP), a Federal effort to prevent vision loss by encouraging early diagnosis and timely treatment of eye diseases.

Review Date: July 13, 2011

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American Academy of Ophthalmology

The American Academy of Ophthalmology is the largest national membership association of ophthalmologists, medical and osteopathic doctors who provide comprehensive eye care, including medical, surgical and optical care. More than 90 percent of practicing U.S. Eye M.D.s are Academy members, and the Academy has more than 7,000 international members. The Academy provides a wide variety of programs, products and services to Eye M.D.s and the patients.

Review Date: December 06, 2011

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Association for Macular Diseases

The Association for Macular Diseases was formed by patients in 1977 to promote education on and research into macular diseases and to provide support for afflicted persons and their families. It also disseminates information on resources and encourages the post-mortem donation of eyes with macular disease for research purposes. We respond to Spanish inquiries by mail only.

Review Date: January 09, 2009

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BrightFocus Foundation

BrightFocus Foundation is a registered 501(c)(3) non-profit organization that funds research into cures for Alzheimer’s disease, macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies.

Review Date: March 14, 2013

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Foundation Fighting Blindness, Inc.

The urgent mission of The Foundation Fighting Blindness is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases.

Review Date: March 28, 2011

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Lighthouse International

Lighthouse International is a non-profit organization, based in New York City, dedicated to fighting vision loss through prevention, treatment and empowerment. The organization provides direct services and information to help people who are blind (or with low vision) lead independent lives. Lighthouse also conducts professional and continuing-education courses for low vision practitioners and professionals in related fields; provides national and international contact information for local support groups, low vision services, rehabilitation agencies, state agencies and advocacy groups; and operates a retail and mail order store with low vision products.

Review Date: June 08, 2011

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Macular Degeneration Foundation

Macular Degeneration Foundation Inc. was established as a tax exempt not for-profit organization. Macular Degeneration patients can call toll-free for phone support and counseling. Information packets are sent, free of charge by request. Their web page provides detailed and specific information at a glance. Contributions designated for research are used 100% to fund research grants to restore vision.

Review Date: March 20, 2013

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Macular Degeneration Partnership

The Macular Degeneration Partnership is a coalition of patients and families, researchers, clinicians, industry partners and leaders in the fields of vision and aging. Its mission is to create an unprecedented collaboration among all these parties to disseminate information about age-related macular degeneration (AMD), provide support to patients and marshal resources for a cure. The Partnership maintains a Help Center on the Internet that provides up to date information on age-related macular degeneration, living with AMD, low vision rehabilitation, along with tools and other related resources. For patients and family members without access to the Internet, the Partnership also maintains a toll-free telephone line. Callers can leave their name and address to receive more detailed information and a free home test for AMD. MDP is a program of the non-profit Discovery Eye Foundation.

Review Date: March 09, 2011

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MD (Macular Degeneration) Support

Macular Degeneration Support is a worldwide nonprofit public service organization. Its mission has been to provide information and support for people who are affected by macular degeneration and similar retinal diseases. Known more simply as MD Support, it is based on the Internet and also offers a public awareness program designed to reach people who are without Internet access.

Review Date: March 17, 2011

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Prevent Blindness America

Prevent Blindness America, formerly known as the National Society to Prevent Blindness (NSPB), was founded in 1908. It promotes the prevention of blindness through a comprehensive program of community services, public and professional education, and research. Prevent Blindness attempts to translate medical and technological advances in the field of eye care into practical and obtainable services for the public. It sponsors vision screening and educational projects for the detection of vision problems in young children and adults. Speakers and educational materials are geared to such specific audiences as elementary school children, senior citizens, nurses, and agricultural workers. Information and advisory services related to current treatments and available facilities, research findings, and medical knowledge in the field of eye care and eye disease, and eye health and eye safety are available upon request by phone or letter. Prevent Blindess' program of professional education provides health professionals and health service groups with eye-care resource materials and educational programs related to services in the community. The group conducts statistical studies on the causes of blindness and funds laboratory and clinical research projects related to the prevention of blindness. There are affiliates and divisions in 23 States.

Review Date: February 04, 2011

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Research to Prevent Blindness

Research to Prevent Blindness (RPB) is the leading voluntary health organization supporting eye research directed at the prevention, treatment or eradication of all diseases that threaten vision. In pursuit of this objective, RPB has committed hundreds of millions of dollars in grant support to provide scientific manpower, technological equipment and eye research laboratory facilities. As a result, RPB researchers have been associated with nearly every major breakthrough in the understanding and treatment of the loss of vision across the past 50 years. Today, RPB provides major eye research funding to more than 50 leading scientific institutions in the U.S. and supports the work of hundreds of talented vision scientists engaged in a diverse range of disease-oriented research. RPB's far-reaching activities are planned and carried out with the expert advice and guidance of a Scientific Advisory Panel composed of distinguished leaders in the field of medical science. RPB neither seeks nor accepts funds from any governmental source. It does not conduct expensive mass mailing campaigns but, rather, relies on bequests and selective appeals to interested individuals, corporations and private foundations to support its research effort. Anyone wishing information concerning current research findings related to a specific eye disease may contact RPB. To obtain a full description of RPB's programs, its audited financial statements and a listing of the volunteers who serve on its Board of Trustees and Scientific Advisory Committees, download RPB's Annual Report.

Review Date: January 13, 2011

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