U.S. Department of Health and Human Services


Rare Diseases

Patient Organizations Database

Enter an organization name or the disease name to search for organizations that help people with rare diseases.

Review Date: March 22, 2011

National Organization for Rare Disorders

Tips for Those With an Undiagnosed Condition

Can’t find answers for an undiagnosed condition? The following information may help navigate through the process of trying to obtain a diagnosis.

Review Date: July 13, 2011

Genetic and Rare Diseases Information Center