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Speech and Communication Disorders

NIH National Institute on Deafness and Other Communication Disorders

Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function. NIDCD has focused national attention on disorders of human communication and has contributed to advances in biomedical and behavioral research that will improve the lives of millions of individuals with communication disorders.

Review Date: August 11, 2011

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American Society for Deaf Children

The American Society for Deaf Children (ASDC) was founded in 1967 as a parent-helping-parent organization. Today, ASDC is a national, independent non-profit organization whose purpose is providing support, encouragement, and information to families raising children who are deaf or hard of hearing. ASDC supplies the information and support families request to ensure that their decisions and actions are based on up-to-date and accurate knowledge.

Review Date: January 02, 2009

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American Speech-Language-Hearing Association

Founded in 1925 as the American Speech and Hearing Association, the American Speech-Language-Hearing Association (ASHA) is a nonprofit organization established to maintain professional standards, encourage development of comprehensive clinical service programs, promote research with regard to human communication and communication disorders, and assist information exchange. The Association accredits institutions offering masters and degrees in speech-language pathology and audiology programs offering clinical services in these areas to the public. With its 50 State affiliates ASHA maintains a national career information program, a governmental affairs program, a public information program, and an information and referral service for consumers.

Review Date: December 20, 2011

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Childhood Apraxia of Speech Association

The Childhood Apraxia of Speech Association is a 501(c)3 nonprofit organization whose mission is to strengthen the support systems in the lives of children with apraxia so that each child is afforded the best opportunity to develop speech. Guided by top experts in Childhood Apraxia of Speech, the organization is the only national nonprofit exclusively dedicated to children with apraxia and their families. The main emphasis of CASANA is: Information, Awareness, Support (extensive online articles, listings of support groups, Walk for Apraxia events); Education (multiple yearly workshops, conferences, webinars); Research support (funds research, organizes scientific meetings, maintains child speech research registry).

Review Date: April 24, 2012

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DeafMD.org Foundation

The DeafMD.org Foundation was established to help create crucial health education materials in American Sign Language (ASL) for the Deaf & Hard of Hearing Community. DeafMD.org is an innovative Web site providing accurate, concise, and valuable health information in American Sign Language to the Deaf & Hard of Hearing population. Using health information created by two trustworthy and unbiased government sources—the Centers for Disease Control and the National Institutes of Health, DeafMD's team of healthcare providers, linguists, and educators translates this complex information into ASL.

Review Date: July 23, 2010

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Dystonia Medical Research Foundation

The Dystonia Medical Research Foundation (DMRF) is a tax exempt organization, incorporated in 1976, created to increase awareness and understanding of dystonia among doctors and researchers and to spark innovative exploratory research projects directed at finding the causes of dystonia and related disorders. These disorders are characterized by loss of voluntary control over body posture and movement. To date, the DMRF has supported over 400 dystonia specific research grants, totalling over $20 million. The DMRF supports workshops, doctor-patient education, and research grants. The Foundation has over 60 chapters and support groups located throughout the United States and Canada and can supply referrals for local treatment. The DMRF is supported by donations from individuals, corporations, and foundations. The Foundation deals with all forms of dystonia.

Review Date: August 26, 2008

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International Association of Laryngectomees

The International Association of Laryngectomees (IAL), consists of local clubs worldwide that provide services and information to patients who have undergone laryngectomies and their families. Members are given information on first aid, postoperative care, rehabilitation, esophageal speech, and other speech alternatives. IAL conducts meetings and conferences and publishes pamphlets and a newsletter. Single copies of some publications are free on request.

Review Date: June 07, 2011

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International Dyslexia Association

The International Dyslexia Association, formerly the Orton Dyslexia Society (ODS), was founded in 1949 and is a scientific and educational society dedicated to the study, treatment, and prevention of dyslexia. The association provides leadership in programs, research, and publications related to specific language disabilities and sponsors annual international conferences on dyslexia. Particular emphasis is placed on understanding the neurological aspects of language disabilities. There are 45 branches throughout the United States, as well as one in Israel and one in Canada.

Review Date: June 07, 2011

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Laurent Clerc National Deaf Education Center

The Laurent Clerc National Deaf Education Center at Gallaudet University provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. The Clerc Center serves as a centralized source of information related to deaf and hard of hearing children from birth through age 21 in the United States and also maintains two demonstration schools, Kendall Demonstration Elementary School and the Model Secondary School for the Deaf.

Review Date: July 28, 2009

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National Aphasia Association

The National Aphasia Association (NAA), a non-profit organization, was founded in 1987 in response to the more than one million persons with acquired aphasia, a disorder caused by brain damage, affecting the ability to communicate, most often brought on by stroke. The NAA's primary purposes are to promote public awareness; improve society's attitudes towards persons with aphasia; increase contact among those with aphasia and their families; provide information and publications to individuals with aphasia, their families and professionals; stimulate programs which might increase the access and availability of support services for persons with aphasia; and promote research which addresses the improvement of the quality of life for those with aphasia. NAA is not a support group, research organization or referral agency and does not at this time, deal with developmental (childhood) aphasia. NAA facilitates the development of local Aphasia Community Groups for persons with aphasia and their families.

Review Date: March 24, 2009

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National Association of the Deaf

The National Association of Deaf (NAD), founded in 1880, safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state association, organizational and corporate affiliates, the advocacy work of the NAD encompasses a broad spectrum of areas including, but not limited to accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications and transportation. The NAD Web site (http://www.nad.org) has a wealth of advocacy information and resources.

Review Date: June 07, 2011

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National Spasmodic Dysphonia Association

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia, a neurological voice disorder. The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.

Review Date: November 28, 2008

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National Stuttering Association

The National Stuttering Association (formerly the National Stuttering Project) is a network of more than 75 active local support groups, and programs created to meet the needs of children and adults who stutter. NSA offers information and support, provides referrals to specialists, serves as an advocate for the stuttering community, and raises the consciousness of the general public about stuttering disorder.

Review Date: September 08, 2010

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National Tourette Syndrome Association

The National Tourette Syndrome Association (TSA) was established to support research into Tourette Syndrome and to provide educational materials relating to the disorder. It helps patients who have been undiagnosed and misdiagnosed by publicizing the symptomatology of the disease; publishes and distributes medical and nonmedical information via booklets and other media; and regularly schedules meetings of the membership to exchange information and learn about new developments.

Review Date: July 15, 2009

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NIH National Institute on Deafness and Other Communication Disorders Information Clearinghouse

The NIDCD Information Clearinghouse is a national resource center which provides information on hearing, balance, smell, taste, voice, speech and language disorders. The Clearinghouse collects and disseminates information; maintains a computerized database of health related materials, and develops and distributes publications. NIDCD Information Clearinghouse responds to telephone, mail and electronic mail requests from health professionals, patients, and the public.

Review Date: April 18, 2014

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Stuttering Foundation of America

The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering. We are the largest - and the first - nonprofit charitable organization in the world working towards the prevention and improved treatment of stuttering, reaching over a million people annually. We also offer extensive educational programs on stuttering for professionals. The Stuttering Foundation also offers a Spanish language site, La Fundación Americana de la Tartamudez, which can be accessed at: http://www.tartamudez.org/.

Review Date: February 14, 2013

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The Autism Society

The Autism Society and its nationwide network of chapters educates parents, professionals, and the public regarding the autism spectrum; improves the welfare of people with autism spectrum disorders; and supports research regarding autism. The Autism Society’s information and referral service, AutismSource, provides accurate information to parents, health professionals, and concerned citizens. Parents can obtain information on understanding autism spectrum disorders, developing necessary skills for advocating for children or adults with autism, as well as assistance with locating Federal and State programs and education services, appropriate health facilities for children with autism, and other resources.

Review Date: June 12, 2012

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