United Leukodystrophy Foundation - ULF
Organization URL(s)
office@ulf.orgwww.ulf.org/
Other Contact Information
2304 Highland Drive
Sycamore,
IL 60178
800-728-5483 (Voice - Toll-free)
815-895-2432 (FAX)
Description
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into the causes, treatment, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. ULF is supported solely by donations.
Print Resources
ULF offers a fact sheet on the leukodystrophies, appropriate for patients and physicians. A brochure is also available. Serial publication: Newsletter, quarterly. Also available is a 2 page listing of all literature availaable through ULF (Resource Listing)