Huntington's Disease Society of America - HDSA

Organization URL(s)

Other Contact Information

505 Eighth Avenue, Suite 902
New York, NY 10018
1-800-345-4372 (Voice - Toll-free)
212-242-1968 (Voice)
212-239-3430 (FAX)


HDSA is a 501(c)3 not-for-profit organization recognized as a charity in good standing by the IRS(EIN: 133349872) and meets all the required high Standards of Excellence of the BBB Wise Giving Alliance. HDSA currently supports more than 40 scientists and 16 major HD laboratories in North America and around the world through HDSA Coalition for the Cure with annual grants which range from $40,000 to $100,000 for HD investigations. Twenty-one HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members. Through 12 HDSA regions, 38 volunteer-based chapters and affiliates, 200+ support groups, HDSA reaches out across the nation to offer HD patients and their families guidance, encouragement, resource information and leadership opportunities at HDSA events, meetings and seminars.

Print Resources

The Huntington's Disease Society of America has an extensive library of informative books, magazines and pamphlets available. The Marker magazine, an outstanding source of information, is designed to provide information and opinion and relay items of interest to individuals with Huntington's Disease and their families, health care professionals, interested friends and supporters.

Review Date

Thursday, Aug 20, 2015