National Down Syndrome Society - NDSS

Organization URL(s)

Other Contact Information

8 East 41st Street
New York, NY 10017
1-800-221-4602 (Voice - Toll-free)


The National Down Syndrome Society (NDSS) envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome. The mission of NDSS is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy. NDSS serves individuals with Down syndrome and their families, as well as health care professionals, educators and others who work to provide services to this population, and the general public. The Society publishes and distributes information pamphlets and clinical care booklets; produces educational videos; and sponsors scientific symposia and national and international conferences on Down syndrome. Information and referrals are provided on an 800 hotline, and free information packets are available. NDSS and the Down syndrome community celebrate National Down Syndrome Awareness Month each October and established the Buddy Walk program to promote acceptance and inclusion of all people with Down syndrome.

Online Resources

Print Resources

Free quarterly newsletter.

Review Date

Monday, Apr 01, 2019