The Ehlers-Danlos Society - EDNF

Organization URL(s)

Other Contact Information

1760 Old Meadow Road, Suite 500
McLean, VA 22102
703-506-2892 (Voice)
703-506-3266 (FAX)


The Ehlers-Danlos National Foundation's focus is to provide emotional support to patients and their families, to educate health professionals and researchers about Ehlers-Danlos syndrome (EDS), and to teach patients how to deal with their individual problems. EDNF distributes reprints of articles on EDS and related issues. Call for a newsletter and a telephone network. The Foundation sponsors annual learning conferences.

Print Resources

The Ehlers-Danlos National Foundation distributes articles on EDS and related issues. Serial publication: Loose Connections (newsletter), quarterly.

Review Date

Tuesday, Aug 26, 2008