VHL (Von Hippel-Lindau) Family Alliance - VHL

Organization URL(s)


Other Contact Information

2001 Beacon Street, Suite 208
Boston, MA 02135-7787
1-800-767-4845 (Voice - Toll-free)
617-277-5667 (Voice)
858-712-8712 (FAX)


The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. Local family support chapters exist in regions of the U.S. Local chapter meetings are scheduled periodically. International VHL Support Organizations are established on six continents.

Print Resources

Serial Publications: VHL Family Forum (quarterly). General Publications: The VHL Handbook; Your Family Health Tree; audiocassettes; videocassettes.

Review Date

Tuesday, Apr 12, 2011