Organization URL(s)
www.xps.org
xps@xps.org
Other Contact Information
437 Snydertown Road
Craryville, NY 12521
518-851-2612 (Voice)
518-851-2612 (FAX)
Description
The Xeroderma Pigmentosum Society was founded to raise awareness about XP, a life-threatening, sun-sensitive, genetic disorder; to provide support to patients and their families through information, protection and services; and to promote research for a cure. XPS also offers a unique, international summer camp for families conducted in a UV-safe environment.
Print Resources
"Understanding XP"; newsletter, "XP Report" all at no charge.
Review Date
Thursday, Sep 09, 2010
