NIH Office of Rare Diseases Research - ORDR

Organization URL(s)

Other Contact Information

6100 Executive Boulevard Room 3A07, MSC 7518
Bethesda, MD 20892-7518
301-402-4336 (Voice)
301-480-9655 (FAX)


The Office of Rare Diseases Research (ORDR) was established in 1993 within the Office of the Director of the National Institutes of Health (NIH), the Federal focal point for biomedical research. ORDR coordinates and supports rare diseases research, responds to research opportunities for rare diseases, and provides information on rare diseases. Public Law 107-280, the Rare Diseases Act of 2002, established the ORDR by statute. The goals of ORDR are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 7,000 rare diseases known today.

Online Resources

Print Resources

To receive periodic updates and important news items from ORDR, send your request to and include contact name, organization name (if applicable), and email address.

Review Date

Thursday, Aug 04, 2011