firstname.lastname@example.org www.essentialtremor.org/ Other Contact Information
P.O. Box 14005
Lenexa, KS 66285-4005
1-888-387-3667 (Voice - Toll-free) 913-341-3880 (Voice) 913-341-1296 (FAX) Description
The International Essential Tremor Foundation (IETF) is an international nonprofit organization; its priorities are patient services and education, public awareness of tremor disorders, and support of research in tremor disorders. IETF has begun a program of educational symposia for patients and families. These take the format of experts addressing lay audiences in the field of tremor research and clinical care. Funds raised over operating costs are used to support neurologic research.
Serial publication: Newsletter (quarterly)--written primarily for patient and family education, reports in layman's language recent advances in research, answers questions of general interest to members, and publishes members' suggestions. Booklets are available which helps to educate newly diagnosed patients and their families about the disease.
Thursday, May 24, 2012