Skin Conditions

Debra of America, Inc.

The Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA) was formed in 1979 as a self-help group for persons suffering from epidermolysis bullosa (EB), a group of inherited skin disorders characterized by the formation of blisters after mild trauma. Staff provide professional and emotional guidance, raise funds for research, and help administer public and professional education. DEBRA of America and its sister organizations in Australia, England, New Zealand, and Israel are dedicated to improving public and professional understanding and awareness of EB.

Review Date: Monday, August 25, 2008

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Foundation for Ichthyosis and Related Skin Types, Inc.

The Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST) is a nonprofit organization supported by public contributions and membership fees. FIRST raises funds to promote research on ichthyosis, a rare genetic skin disease, provide advice, guidance, and support among those affected; and distribute educational material to the public and medical professionals. The Foundation uses its national network of volunteers to bring self-help and educational support to individual members and their families. FIRST sponsors national and regional meetings and conferences, which feature leading researchers and clinicians and allow individuals with Ichthyosis to meet each other.

Review Date: Tuesday, May 17, 2011

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