NIH National Institute of Neurological Disorders and Stroke - NINDS

The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke. The Institute awards grants for research projects, program projects, and center grants; provides training support to institutions and fellowships to individuals in the fields of neurological disorders and stroke; conducts intramural and collaborative research; and collects and disseminates research information. Requests for information should be directed to the Office of Communications and Public Liaison.

Review Date: Tuesday, July 26, 2011

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American Academy of Neurological and Orthopaedic Surgeons

The goal of this scientific and educational association of orthopedists and neurosurgeons is to improve the quality of care and directions for patients in the fields of orthopaedics and neurosurgery. The American Academy of Neurological and Orthopaedic Surgeons (AANOS) sets high standards for training, credentialing and surgical education and for the practice of orthopaedics and neurosurgery by teaching through the Journal of the American Academy of Neurological and Orthopaedic Surgery. AANOS also hosts meetings and workshops throughout the year for practitioners in the field.

Review Date: Tuesday, October 13, 2015

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American Academy of Neurology

The American Academy of Neurology (AAN) is a professional society composed of neurologists and professionals in related fields who share a common goal of continued growth and development of the neurological sciences.

Review Date: Monday, October 05, 2015

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American Brain Tumor Association

The American Brain Tumor Association (ABTA) is an independent, not-for-profit organization founded in 1973. Services include over 40 publications which address brain tumors, their treatment, and coping with the disease; these publications are written in easy-to-understand language. Our materials address brain tumors in all age groups. ABTA also provides free Social Work consultations; a mentorship program for new brain tumor support group leaders; a nationwide database of established support groups; the Connections pen-pal program; networking with organizations that provide services to brain tumor patients and their families; and a resource listing of physicians offering investigative treatments. The association offers national Symposia and regional Town Hall Meetings for patients and their families. Services provided are free to patients and their families.

Review Date: Friday, December 12, 2008

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American College of Physicians

The mission of the American College of Physicians (ACP) is to enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine. ACP membership includes over 118,000 physicians in general internal medicine and related subspecialties, including cardiology, gastroenterology, nephrology, endocrinology, hematology, rheumatology, neurology, pulmonary disease, oncology, infectious diseases, allergy and immunology, and geriatrics.

Review Date: Monday, August 23, 2010

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American Parkinson Disease Association, Inc.

The American Parkinson Disease Association (APDA) was established in 1961 to provide information about the various services available to patients with Parkinson's disease and to make funds available for research in new drug therapies and to find a cure. The Association maintains 63 information and referral centers. The centers also provide educational booklets and information concerning health services in their areas, the availability of physicians experienced with the disease, and updated information on new medications. The Association awards fellowships that fund the work of medical researchers. APDA's support is dependent on contributions. APDA has 58 fundraising chapters and over 800 support groups nationwide. Additional resources include: 1) APDA National Resource for Rehabilitation; tel. 888-606-1688; e-mail This program provides access to a licensed physical therapist at Boston University’s Sargent College for questions about exercise, information about programs in the caller’s area, and educational materials. 2) APDA National Veteran’s Information & Referral Center; tel. 888-328-1715; e-mail This center serves as a centralized resource dedicated to supporting and improving the lives of veterans with Parkinson’s disease and their families.

Review Date: Tuesday, August 21, 2012

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American Rhinologic Society

The American Rhinologic Society’s mission is to serve, represent and advance the science and the ethical practice of rhinology. The Society promotes excellence in patient care, research and education in Rhinology and Skull Base Disorders. The American Rhinologic Society is dedicated to providing communication and fellowship to the members of the Rhinologic Community through on-going medical education, patient advocacy, and social programs. The ARS continuing medical education activities serve to enhance clinical skills and promote research.

Review Date: Wednesday, January 07, 2009

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Bachmann-Strauss Dystonia and Parkinson Foundation

The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) is a nonprofit organization established to find better treatments and cures for the movement disorders dystonia and Parkinson’s disease. The goals of BSDPF are to (1) raise funds to support advanced medical research of Dystonia and Parkinson's disease, (2) educate patients and the medical community about the most recent advances in treatment and research, and (3) increase awareness of Dystonia and Parkinson's disease among the general public and the medical community. BSDPF supports research and provides treatment. BSDPF also promotes patient and medical education by providing annual patient symposia focus on Dystonia and Parkinson’s diseases.

Review Date: Tuesday, September 07, 2010

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Dana Alliance for Brain Initiatives

The Dana Alliance for Brain Initiatives is a nonprofit organization of more than 200 leading neuroscientists including nine Nobel laureates. The Dana Alliance is committed to advancing public awareness about the progress and benefits of brain research and to disseminating information on the brain in an understandable and accessible fashion. Supported entirely by the Dana Foundation, the Dana Alliance does not fund research or make grants.

Review Date: Wednesday, October 14, 2015

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Epilepsy Foundation of America

The Epilepsy Foundation is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programs conducted at the national level, people with epilepsy throughout the United States are served by more than 50 Epilepsy Foundation affiliates around the country. The Epilepsy Foundation is a non-profit, charitable agency, designated as a 501 (c) 3 organization by the Internal Revenue Service.

Review Date: Thursday, July 09, 2015

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Guardians of Hydrocephalus

The Guardians of Hydrocephalus Research Foundation (GHRF) is a non-profit group dedicated to research into the cause and treatment of hydrocephalus. The Foundation operates a laboratory in the Department of Neurology at New York University Medical Center, in which information from clinical and research facilities is integrated to provide for better diagnosis and treatment of hydrocephalus, a frequently-occurring congenital disorder that can also occur shortly after birth. Hydrocephalus accounts for a large proportion of adult patients with a diagnosis of dementia.

Review Date: Friday, November 21, 2008

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International Brain Injury Association

The International Brain Injury Association was founded by George A. Zitnay, PhD and Martin B. Foil, Jr. following an international meeting on brain injury held at Oxford University in April of 1993. The formation of IBIA came as a recommendation by the group assembled in Oxford, that a need existed for an international organization that worked with professionals and families from a multidisciplinary approach. IBIA was established to encourage international exchange of information, to support research, to provide training especially in developing countries and to advocate for brain injury. One of the approaches taken by IBIA was the creation of the “World Congress on Brain Injury”.

Review Date: Friday, December 02, 2011

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International Essential Tremor Foundation

The International Essential Tremor Foundation (IETF) is an international nonprofit organization; its priorities are patient services and education, public awareness of tremor disorders, and support of research in tremor disorders. IETF has begun a program of educational symposia for patients and families. These take the format of experts addressing lay audiences in the field of tremor research and clinical care. Funds raised over operating costs are used to support neurologic research.

Review Date: Thursday, May 24, 2012

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National Brain Tumor Society

National Brain Tumor Society (NBTS) is a 501 (c) (3) nonprofit organization committed to finding a cure for brain tumors. We aggressively drive strategic research, advocate for public policies that meet the critical needs of the brain tumor community, and provide patient information. Headquartered in Watertown, Massachusetts, with offices in San Francisco, California and Wilmington, Delaware, we host activities throughout the United States.

Review Date: Monday, October 05, 2015

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Society for Neuroscience

The Society is an organization of scientists and physicians dedicated to understanding the brain, spinal cord and peripheral nervous system. Members are residents of Canada, Mexico and the United States - where more than 100 chapters organize local activities -and total 25, 000. The goals of the Society are to: advance the understanding of the nervous system by bringing together scientists of various backgrounds and by encouraging research in all aspects of neuroscience; promote education in the neurosciences; and inform the public about results and implications of new research

Review Date: Thursday, August 28, 2008

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The Brain Aneurysm Foundation

The Brain Aneurysm Foundation is the nation’s only nonprofit organization solely dedicated to providing critical awareness, education, support and research funding to reduce the incidence of brain aneurysms. The Foundation’s mission is to provide support and educational materials to the medical community, the newly diagnosed, survivors, family members, friends and the general public regarding the facts, treatment options, and recovery process for brain aneurysms.

Review Date: Tuesday, November 15, 2011

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