Pituitary Disorders

NIH National Institute of Child Health and Human Development - NICHD

The NICHD is part of the National Institutes of Health (NIH), a component of the U.S. Department of Health and Human Services (HHS). The NICHD has primary responsibility for conducting and supporting basic, translational, and clinical research in the biomedical, behavioral, and social sciences related to child and maternal health, in medical rehabilitation, and in the reproductive sciences. Information specialists are available to answer your calls Monday through Friday, 8:30 a.m. to 4 p.m., EST.

Review Date: Wednesday, October 14, 2015

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Cushing's Support and Research Foundation

The Cushing's Support and Research Foundation was established in 1995 to provide information and support to Cushing's patients and their families. The Foundation was incorporated in the state of Massachusetts as a non-profit organization and is an Associate Member of NORD, the National Organization for Rare Disorders. The CSRF has a Medical Advisory Board consisting of very experienced surgeons and endocrinologists who are world renowned for their expertise on Cushing's. The CSRF is primarily funded by membership and personal donations. The CSRF maintains a database of many present and past Cushing's patients willing to support others.

Review Date: Thursday, February 14, 2013

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Human Growth Foundation

The Human Growth Foundation (HGF) is a national organization of volunteers concerned with child growth abnormalities, specifically dwarfism of all forms, whether caused by pituitary growth hormone deficiencies, Turner's syndrome, or bone disorders. The Foundation, created in 1965 by parents of children with severe growth problems, offers parent education and mutual support, supports research, and promotes public awareness of the physical and emotional problems of short-statured people. The core of founding parents has since been joined by medical persons (endocrinologists, pediatricians, and physicians) and researchers. HGF acts as a clearinghouse for families with growth problems and administers a medical research program.

Review Date: Thursday, August 20, 2015

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Pituitary Network Association

The Pituitary Network Association (PNA) is a nonprofit organization which was formed in 1992 in Los Angeles, California, as the Acromegaly Network Association. Patients referred to PNA receive information on pituitary adenomas and peer-counseling. The lack of clear and concise written information about the various pituitary adenomas, and the difficult and intricate illnesses and afflictions associated with the many types of adenomas led the Association to engage some of the world's leading scientists, endocrinologists, and neurosurgeons to write information booklets and brochures, in layman's language. Publications are now available form PNA on Acromegaly, Cushing's, Prolactinomas, and pediatric tumors. The Pituitary Patient Resource Guide is available in it's 4th Edition.

Review Date: Monday, July 14, 2014

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